Wednesday, September 30, 2015

Ups and downs

Hurricane Joaquin is not coming here to Florida. (an up)
But Hurricane Joaquin is heading towards my old stomping grounds in New Jersey! ( a down)

Famous Bald Eagle, of Ozzie and Harriet Internet fame, in Lee County Florida died today at the young age of only twenty, half his life expectancy. (another down)
The (up part) is his Harriet will be taken care of by his stand-in younger Bald Eagle who took it upon himself to be there for her while Ozzie was away getting better from his first accident; this was his second or was it. (Geez folks don't be mad at me it is what it is.)

Simply put: life is a crap-shoot and every day is a new beginning or old replay or bad day at times or a heck of terrific experience or adventure or what you make of it as long as no one throws a wrench in it...yep ups and downs.
Funny thing is somehow we all survive except sadly some  Ozzies, but most do live to fight another day and if not you won't care anyway, true? 

In a way we are all Ozzie, we live we love and fight for whats ours and then we die; the end.

Tuesday, September 29, 2015

Necrosis is not uncommon in Multiple Sclerosis

Many of us are prescribed IV steroids for optic neuritis and exacerbation. I myself have been dosed five times since 2009, and yet I was first told of this horrible side affect just this last time after all was said and done with my August optic neuritis need for the IVs again, now I wonder perhaps not.  (the ophthalmologist did state that my optic nerve, which is damaged, but only thirty per cent would have been much worse without the iv intervention though), a tough call I suppose, one of those damned if you do and damned if you don't... My heavily normal dosing was typical of 1000 mg IV solumedrol each day, a heavy duty steroid, for me only/just three days, but many people are dosed for five.
Perhaps the fact I am already on other medications has protected me slightly, but bone necrosis can be insidious and cause bone breakage and of course the name itself means death of the bone and has been a major cause for the need of joint replacement when this occurs, usually on the hips bi-laterally.
I have had many an X-ray and MRI of my body, even the nuke test of last year and also a bone density this past June and any of those would have been able to tell if my bones have this dangerous devastating bone disease with MRI's being the most telling as well as that nuke test.
But I do wonder with my current thighs being constantly numb and burning, and I do have already seven types of arthritis too, out of the more than one hundred types, goto to learn more: arthritis.org . In my spine (spondylosis), shoulders (bursitis), neck(cervical stenosis), elbows(golfers elbow/ulnar nerve impingement) and hands( basilar joint arthritis), hips(osteopenia) all different kinds, not to mention Fibromyalgia that is systemic. 

The only reason that I mentioned those above is due to the fact my bones are already compromised.
Concern is realistic, but since my tests were all done before this last dose; I wonder how many before it happens to me? 

I am writing tonight with another head clonking hitting my head on the desk when trying to see why we were off line once again, checking those wires while Hubby was busy working in the garage.
What I can't understand is why I cannot seem to get the spacial thing right, since I do this way too often, that is clonk my head. And over the years I have had way too many concussions, which to all of you may explain a  lot.  

PS Pope Francis was a warm wonderful choice for the Catholic church and many Americans I am more than sure will remember his visit forever in their lives; and he is what we call a Mench.
 

Monday, September 28, 2015

What's up with people deleting posts on my own FB page?

 
Shocking! Who thinks that they have that right?
I am the one who posted those fun, funny meaningless tests on my own timeline!
Please people respect others' right to do that.
As my physical body diminishes its ability it feels good to be able to do those silly tests they give me false hope of intellect in my minuscule brain that I never had before.
No, I was/am just a slightly above average IQ person, no genius.
So coming out with amazing results, even in non-purposeful games of chancing my mental flex-abilities to be way above average makes me feel pretty darn good! I need that to ward off many days of depression. 
For shame whomever did this deplorable deed of no use to anyone's self confidence than my own or perhaps yours if you too succeeded as well as I had........Ah, methinks the reasoning behind the malicious devious loathsome behavior of tampering with another's posting... You took the tests and failed terribly! AHA!
That has to be the only explanation, hmm?
For awful shame and undesirable ways of thinking for you and me.
OR.........
You felt that I was bragging and being uncouthful, than that makes sense in a mean non-understanding way.

Do you even know me?
No.
I don't think so.   

All in all I have just accomplished nothing.
But it does make me sad when people do these things. 
Good night.

Sunday, September 27, 2015

Where have all the fall TV shows gone?

All the Fall TV shows gone


Where have all the fall TV shows gone, long time passing?
Where have all the fall TV shows gone, long time ago?
Where have all the fall TV shows gone?
Young novices have picked them everyone.
Oh, when will they ever learn?
Oh, when will they ever learn?

Where have all the young novices gone, long time passing?
Where have all the young novices gone, long time ago?
Where have all the young novices gone?
Gone for higher education everyone.
Oh, then they will learn.
Oh, then they will learn.

Where have all the pro bonos gone, long time passing?
Where have all the pro bonos gone, long time ago?
Where have all the pro bonos gone?
Gone for monetary reimbursements everyone.
Oh, when will they ever learn? They have.
Oh, when will they ever learn?They have.


More money with old show stars will continue for a very short time, time passing.... soon they will all learn and be gone.

Where have all the people gone switching to other TV shows on cable channels I suspect; soon we will all learn that some FOX and PBS are still free with quality programming and that is where some shows have remained...TA DA! 

Just a little ditty off the cuff, thanks Peter Paul and Mary!
SILLY ME!

Saturday, September 26, 2015

Some nights are more difficult than others

As we all know writing involves thinking and is a process of putting words out there spoken or in this case to paper more distinctly finger stroking letter choices to a keyboard that places these decisive connections or at times disconnected thoughts to the public domain via this Google blog system, huh?

Yes, that's right, I think that is how it gets from here to there, at least when my convoluted ideas are finally put into some type of formatting program and they somehow arrive published for all and anyone to read if they care to, true?

And so when I take a mediocre effort to provide "entertainment" nightly to my readership that is how involved the whole process can be, and so I thought if you were not in this knowledgeable loop to already have this major information that is in the development of where and why and who and when and lest us not forget the what this amazing and slightly still mystical magical happening can happen, ya know? I am still a bit baffled.

I feel so responsible in informing you all, and so periodically I take it upon myself to make any of you whom may have been wondering or not, in the know how.
Got that?

On this wasted short synopsis of nonsense written in word way too long, again, allow me to be the very first to wish all of you a very happy good night and ask all of you to kindly count all your blessings and share all your overages with you know whom and we will too!  

And next time please be here or be square, ya hear?

Friday, September 25, 2015

When people retire...

A cheer for them is rather nice, but not for someone leaving with so many not liking them; it smells of hypocrisy, and meanness.
Having a knee jerk reaction to the Speaker of the House, John Boehner's announcing his decision to resign at the end of October was met with raucous applause, sadly.   

I only say sadly due to the fact no matter what one might think of this very sensitive man, who cries at the drop of a hat, but he worked for the GOP for twenty-five years, and that does deserve some type of respect. After all his constituents in Ohio kept voting for him term after term after term. He is retiring to here though, i.e. Florida, Marco Island, south of here, meaning south of us in Port Charlotte. He apparently purchased a home there two years ago, thinking ahead, maybe?

Any-who, I was not a fan of his by any means and thought his behavior of crying was accepted more readily than a woman's in the same position would have been. I might be out of left field but I think he has a hormonal issue, but I'm no doctor. 
But I still believe that anyone in this day and age who does a job for twenty-five years should have earned some type of respect from the very least his own colleagues.

Oddly enough I Googled him trying to get a little more insight to this unusual fellow, and an enigma in many ways. Shockingly I found out that his birthday and Hubby's are the same day and year!
Yep, birthday twins, but so, so different in so many ways!
Although, I don't really know him; all I know is Hubby doesn't cry, and we have known each other since August of 1967, that is Hubby and I! Albeit, Hubby once said he too was an enigma, or was it an amoeba, yep, he was joking of course, or not?
 
Good Luck John, and try to stop being so upset all the time ,you'll live longer with retirement around the corner, it's just an idea.

On this un-requested notation of mine, allow me to be the very first to wish all of you a very happy good night and ask all of you to kindly count all your blessings and share all those overages with you know whom and we will too!

And next time please be here or be square, ya hear!

Thursday, September 24, 2015

Lessons from our vacay, with some adjustments for us and Gus

Everyone knows that eating out at medium priced restaurants (to us expensive at $20 or more for one serving, but that is what most consider medium priced these days.)and that they have a habit of over feeding their patrons and charge accordingly; well since we ate either back in our hotel room or in the van with our Gus and we were able to share our so-called single orders.Use their lids or bring your own paper goods; we never buy drinks we always have either water or coffee with us in thermoses in our cup holders in the van.
And many of those dinners were even too much for two and we ate very well, with seafood being a favorite of mine! Thankfully we had frigs and microwaves in the rooms too, a few times leftovers took care of another meal for two.

Walking is another great idea when on vacation, but we had two dilemmas to deal with, either heat or rain and mostly both at any given time, so we drove to many venues and did our sightseeing in the comfort of our fairly economical air-conditioned van, getting 32 miles to the gallon highway at times.To us this is great after trading in a vehicle that was thirteen years old that was getting nine miles to the gallon, of course we never went anywhere then. Gas prices have gone down too recently, and many places were close to two dollars a gallon, and a couple were at two dollars a gallon and one was even less in South Carolina! Now many here are that low too.

Actually, we did get out and walk in parks with Gus, our Havanese rescue dog, but still we had to make sure he was allowed; being a service in training dog he was, and that it wasn't too wet or hot; for me to use my walker.

I mentioned previously parking can be an issue in many of the historic sights mentioned, but they did have parking garages for a price, usually not too bad. But we are cheap and avoided them and looked for free street parking, which was a project in itself at times or a game; all how you look at it, hmm?

All in all we did have a memorable time and have been discussing our next adventure, perhaps New Orleans, only ten and a half drive time hours from here, two days each way at our casual non-rushing
way of travel and of course a couple of days there too!

My mind has been replaying this long overdue venture of ours and I am more than sure I will recall some more tips that I would love to share, yep here are a couple more...
 Oh, we had made reservations in dog friendly and handicap room places, which made it easier than hunting once arriving as we foolishly had been known to do when the boys were little and usually had a dog in tow also, but we were kids too and created some interesting adventures.
Going to the welcome centers upon arrival, if early enough, for maps and pamphlets can also be better for planning a daily itinerary, and asking hotel personnel or concierges for good nearby restaurants.
Out of the four hotels we stayed at three had complimentary breakfasts; another time and money saver.  

The furthest we were from the hub of any locale was only a couple of miles, so we also saved money not staying right in the midst of the action, but many of you don't mind paying for that and that is your right.
For us on a retirement income, we saved up and stayed and paid for everything even below our initial budget, but without realizing that until we came home and we still had a great time!
Thus the plan for another one, soon...!

Wednesday, September 23, 2015

"It aint over til its over!"

 
"Its like deje vu all over again!"
Ya gotta love a guy who told it as is was at any given time and made you scratch your head when he did and then agree with his odd statements, hmm? Yogi Berra died last night at age 90; fifty of his Yogi-isms are here:  http://www.freep.com/story/sports/mlb/2015/09/23/yogi-berra-quotes-isms/72669094/
 What a memorable sports figure whose logic will live on in all those words as well as his altruistic giving back.

Moving on...

Miracles are not likely in life; nothing new there, hmm?
They are a rare occurrence.
So  "It ain't over til its over." I will think, at least try hard to, now more than ever, since...my neuro today gave me a harsh reality check once again with my MS there is NO MAGIC PILL you get worse no matter what is done and I am.Yep no cure. For the first time I am questioning my desire to keep searching for answers and medicinal relief, today I heard my inner voice saying, "why bother"...and I am starting to think that maybe I should listen to that weak small inner thought, nearly a whisper...
I had liked to think I had my depression under control with distraction, but no doctor had been so in your face harsh, nearly mean, and honest at the same time with me before.Poor me, is not an attractive look for anyone, but I suppose it doesn't matter when you have chased most people away already, who cares, really?
I have been taken to my bed whether on vacation or at home, truly nothing is changing.
I should have realized.
Did I just hide like a bird with a long neck in the sand, damn, I cannot remember what they are called, all part of this insidious disease.
Can't ask Hubby since he's in the other room and I am in bed.
Oh darn, dagnamit, Its like deje vu all over again!
But I mean it, and sadly it is NOT over til its over.
Oh yes it is! It is...not yet.
 
BAD DAY, please forgive.
 

Tuesday, September 22, 2015

Amelia Island Florida, our personal favorite!

321miles from Amelia Island Florida to Port Charlotte Florida, and vice versa. Water and marinas and trains oh my! First the welcome center where the woman, Barbara was quite helpful with maps and pamphlets, helping us to plan our itinerary, also a New Jersey transplant from Atlantic County below Atlantic City, NJ.
Access to their museum was a breeze and quite interesting, notice the ramp.Although the aged docent seem to be misinformed about the anniversary in St. Augustine, Michael Keating( I joked Alex P. Keaton, similar but not really to Michael J. Fox's character on Family Ties, https://en.wikipedia.org/wiki/Family_Ties.)He had said that St. Augustine was celebrating their 500th not their 450th, but it is their 450th!He probably had twenty years on me. Otherwise all was interesting,and he suggested visiting Kingsley Plantation, the story was NOT quite what one would expect, all slaves we were told to hoe a quarter acre then do whatever they felt they wanted to do for the rest of the day in their private quarters on their own time. Kingsley, a white man married his African American wife and freed her and all his"slaves", all prior to the Civil War.The plantation was on the ocean and it is in the picture below the museum. Lastly, is the St. Johns Ferry we took on our way towards home.



                                                


Our favorite place and we would like to go back someday, that is to Amelia Island!

Monday, September 21, 2015

Charleston, doing the Charleston!

    All the lovely historic places that we visited had one issue that many with handicap needs have to try to circumvent to enjoy the locales is access. Historic buildings do not have to abide to the ADA, Americans for Disabilities Act or so they say, which has been known to cause havoc with my desire to entree these learned areas of much desire. I studied history of art in college and even when our sons were small and we traveled the east coast New York, Pennsylvania, Delaware, Maryland and Washington D.C. and all points south from our point of origin in New Jersey in those days and many trips to our now home, Florida, museums were always a rainy day indoor entertainment place for all of us. But these days steps and not ramps are the only way to get into too many places even souvenir shops. Below when I wanted to get my Charleston South Carolina spoon I was directed to the only place that I was told carried them a Five and Dime. Roger, the manager is the only person in the picture below and he helped me with my wheels to access his place of business, by first carrying my walker up the steps and then allowing me to lean on him, a true Southern Gentleman; Hubby was riding around in our car/van with Gus since parking was also quite challenging. The other young man not photographed but helpful was named John in front of one of the hotels that allowed Hubby to help me in and out of our vehicle the only way to manage it all! At the Charleston River park we were able to park and enjoy the Gazebo and statues as well as the majestic homes surrounding the park that was quite lovely.                              






Sunday, September 20, 2015

Georgia on my mind...

A WW11torpedo at rest area in Georgia off I95, it was found off shore.

Exit 58, don't bother it's a rip off! Foolishly I paid ten bucks for 6 peaches, my bad, stupid on my part; at the rest stop ala torpedo a women offers a free gift if you stop there and so we did. Yep, no one gets something for nothing, our gift was three jelly fruited candies, yep three!

Had to keep moving due to the rain; we had an auto tour via ours.City is lovely and well maintained but you must pay for parking even if you have a handicap placard anywhere in the city.

Saturday, September 19, 2015

Friday, September 18, 2015

September 9-11, St Augustine Florida,September 11-13, Savannah Georgia, September 13-15, Charleston South Carolina, Septmeber 15-17, Amelia Island Florida

A vacation ten years in the making!
Yep you heard right; our last mini vacation was in 2005 just before Katrina struck the panhandle and most all of the northern Gulf states. We had been five days out on that vacation trip and Hubby had a toothache and I had an earache and Skipper, yes our Bichon Frise who passed  away just last November also suffered an ailment with a skin irritation so we felt it best to head home from Seaside Florida, beautiful and artsy by the way. We had been to Cedar Key, also a must see and Panama City and with all the annoying issues we made it home before we even knew about Hurricane Katrina and the devastation she was about to subject that area to, but was quickly informed about her on our return.
Many other health issues caused our delay to go since then and this time we threw caution to the wind and took the chance with this whirlwind four historic sites in about eight days!
Our furthest leg of the trip from here in Port Charlotte to St.Augustine 277.56 miles, next to Savannah Georgia 175.46 miles from there, next to Charleston South Carolina 117.83 miles from there, and then Amelia Island Florida 226.31 miles from there!
And we took the scenic route home from there the longest trip for us. 

Eventually we would like to go to New England and even New Orleans that we had had reservations to go to way back in 2001 when 9/11 happened and deterred our plans with concerns of safety.

At this current time I am sorry to report there will be a delay of my interesting pictorial, but it will be very soon. 
 
 Sorrowfully my ills came along with us and tonight I am still writing from my bed as I did with my blurbs along the trip.

Good night to all and all be well and enjoy life no matter what!
I am doing my part in that mentality.

Tuesday, September 8, 2015

Self worth?

(*Again this posted before I was ready! Forgive and forget that premature-posted blog that has been deleted. In reality it was not written at all!) 

Is our self worth truly ingrained meaning born in us or taught some how, or is it something we must find after realizing that we are more than capable to succeed?

Many of us are lucky enough to live in loving families that continue to support us no matter what the outside world tries to do to undo or under-mind our confidence.

But as we grow we find that no one can change our minds of how we truly feel about ourselves and our place in this world and that the bottom line is that we are responsible for our own lives including handling its ups and downs.
Character is built from dealing with all trials and tribulations thrown at us as we go through this one and only life that we get.
Albeit many believe this life is one of many, if only...perhaps with much hope.

Moving on...

I am scheduled for the erg eye test in about ten days.
It is given to check retina damage, and arterial-sclerosis as well  giant cell arteritis, etc.
 More info below:

"What does an abnormal ERG mean?

An abnormal ERG result suggests abnormal function of the retina due to diseases of the retina or abnormal function of the retina as occurs with other conditions such as arteriosclerosis (hardening of the arteries) involving the eye vessels, giant cell arteritis with eye involvement, metabolic diseases called mucopolysaccharidoses, detachment of the retina, siderosis (excess iron deposits), and vitamin A deficiency."

Thanks to:http://www.medicinenet.com/electroretinography/page2.htm

So it is just another tool to try to find out why my eyesight is not always doing what it should and this is being done by the neurological ophthalmologist.

On that note allow me to be the very first to wish all of you a very happy good night and ask all of you to kindly count all your blessings and share those overages with you know whom and we will too!

And next time please be here or be square, ya hear!

PS treat all people as well as you want to be!
Since no one is better than anyone else!
 

Monday, September 7, 2015

Ageism has nothing to do with it!

Bad or impaired drivers should not be allowed to continue to drive ...without retesting or training.
Ever notice the too slow in the left lane person or the weaver that goes in and out trying to get there, wherever, faster than anyone else and ends up at the red light having to stop anyway at the same time you do? Or the wrong side of the road driver down a one way street or even not a one way, just the wrong side of the highway?
Or the person who backs up in a parking lot and doesn't look around for anyone else and horns go off and wheels screech or people have to jump out of the way?  
Some folks just need to either pay attention or learn driving etiquette, sincerely!
And others just need to have their licenses revoked.
Danger arrives when people who have neck problems or leg strength or eyesight impairment or so many other physical issues but don't know when to say I must find another way or I might harm someone, including myself!
Yep, anyone at any age or gender can be in that position and that is who I am talking about.
People care enough to either find a way to be able to drive safer or give up that license and take public transportation or ask a neighbor on their way out if they are going anywhere where you have to go, or offer to pay for a neighbor's gas if relatives are not there for you, but be safe and that means for yourself and the public at large!

Oh me?
I gave up driving when I was considered legally blind a few years ago, although it was only one eye, but due to my legs weakness and my cervical stenosis not allowing me to look all around easily I felt it better to not take any chances. Oh and even with a rear camera, like we have now in this this new vehicle, but even it says to look all around too. So Hubby looks around and I look at the camera!

All those years Hubby was a deputy and before that a fireman for as many he mentioned all those crashes he went to that many were due to many peoples poor judgment and so many who did survive should not have been driving to begin with and many of them were the cause of fatalities.
As a fire chief they used the jaws of life too at too many crashes.

Being completely alert and able to act fast are two of the many needs to be a safe driver.

Another night of just thoughts again...good night to all and to all be well, please, sincerely!

Sunday, September 6, 2015

All lives matter!

Upsetting to me that we have to teach this to another generation that ALL LIVES MATTER!
Just like so many other things, being polite and caring for others should be givens not things that have to be retrained to a generation of wild insensitive people; I seriously hate, yep hate to think that!
But apparently with all the news lately it is not an automatic knee jerk reaction to what is right and socially acceptable part of peoples lives.
It is the simplest non-sectarian golden rule,"TREAT PEOPLE HOW YOU WANT TO BE TREATED!"
Okay, I suppose atheist might not believe in that, but even they believe in justice. Oh wait believe in does have some religious connotations. And even I try hard not to be a zealot of any one belief as I write nightly, although many a time I do deviate due to my birth religion that I am still partial to, but not actually practicing.

Then, here I got it people just treat people like people, okay?  

So much hate I do believe is because people are misinformed or due to a rumor crowd mentality or just due to forgetting tomorrow is another day to rethink what's bugging you and taking a time out, maybe?  
If everyone would just chill and think before acting perhaps all these thoughtless actions of violence against others would not have happened?

My thoughts for tonight. Below is a must see video from a police officer shared from my childhood friend Mary. But hit home due to many reasons.Please click on this link and you will not be sorry.



 https://video-atl3-1.xx.fbcdn.net/hvideo-xpf1/v/t42.1790-2/11929284_10207543090913168_839373973_n.mp4?efg=eyJybHIiOjM3NiwicmxhIjo5NDh9&rl=376&vabr=209&oh=ee0e660f89e6bf659bc00ea41e42514a&oe=55ECE4B4

Saturday, September 5, 2015

Fantastic!

Now do any of you really know the implications of the meaning of this word?

 
Fantastic
"adjective
1. conceived or appearing as if conceived by an unrestrained imagination; odd and remarkable; bizarre; grotesque:"
 Thanks to: http://dictionary.reference.com/browse/fantastic

Quite an interesting true concept of this more complex word than I recalled in my brain files. 

Okay, now what could have I thought was a fantastic thing to entitle this tonight?
I know that you do not have an idea at all of what I might be speaking about, although this is not fantastic in a good way but odd bizarre and also sad way, to us it is hard to believe poor Gus's bad luck, hasn't he been through enough being a rescue and all, really?
Our dear Havanese Gus has had two split by many weeks of separation seizures, the second one was today!
Scary, but no after effects, thankfully.
The first time we called his doctor and were warned about things that would be considered an emergency; like the length of time that it lasted and if he became feverish etc. and we all agreed that it could have been an one time occurrence, but now it seems he may need a work up like us humans have when something is awry. Interestingly enough a medication that is used for dogs is an anti-seizure one called Neurontin, which is the non-generic name of my own Gabapentin, also used for spasms in MS.
When it happens to him he cannot get up and he shakes, but does not paw at anything or foam at the mouth, he just lies down and can't get up and shakes and allows us to pet him and voice comfort him, where we can also make sure his body temperature is not rising which would signal an emergency, once it stops he appears fine, he even drank water and ate his dinner.
These could be petit mal seizures, but the cause is the mystery and that is why the workup, probably not till Tuesday since this is a holiday weekend. We do have an emergency hospital if we have to go. We took Skipper there a couple times for his stomach problems on the weekends and sadly when he died on that Sunday of November 2, 2014.
Makes me sad and upset to think Gus would have to go there; I hope we can wait till the weekend is over.  
Too upsetting, but it's the only one in county and they do know their stuff.

Moving on...

 Guess what; another storm has been named in the north Atlantic, Grace!
The good thing is that she is four thousand miles away!
Though she does bear watching...uh oh! (Happy meteorologists again!)

Good night to all and to all stay well, sincerely!

PS My medical situation is unchanged; enough said.

  

Friday, September 4, 2015

Bloodsucker!

Ten vials worth was taken from me for testing that will take six weeks to get the results!
The vampira, Nancy, had to get special verification and use different size tubes to take my ruby liquid life's force for an examination and a trial to see what's what and causing me NOT to be ME!
Yep a trial of vials! The delay of outcome has not been told; it makes me feel as if I am living ye days of olde.

My fear is with my wee brain Googling all these symptoms verified by all thee doctors and me trying to take the mystery pieces of the body crime to find is causing me to lose all my normal lifetime! 

Shall I be an idiot instead and pretend to not know that all these symptoms do spell out many serious problems that have to be addressed!

Many already are or have been, but not all things tried worked.

Oh I forgot to tell that my neuro doc took me off of the Ampyra yesterday due to what we both suspected that it could be causing my latest problems, the leg paresthesia with burning twisting sensations, now in arms and lower extremities( knees to feet) that used to be fleeting but now is constant and has not gone away. 
So far there have been only two pills not taken of the Ampyra, since I was told to stop after my morning one was taken at nine A.M.yesterday, so last night's and this morning's were not taken.

I suppose after calling the company, Acorda, last week, and having spoken with their pharmacist and of course they support their product, but did verify that it was one of its many side effects.

Today, I Googled others who did not walk better with Ampyra but also ironically got worse, and even after stopping it had not improved sadly, meaning the side effects did NOT go away. 
Oddly enough it had been developed to help people with Multiple Sclerosis walk better, and for only that purpose.
In fact what many were saying is that it worked only 30% of the time; it is also sold in Canada under the name Fampyra as well as the UK under that name and has been here in the US and approved by the FDA since 2010.

So I am not sure what will become of me? 
This newest evolution of my being is most upsetting and not at all what I was hoping for...oh well...I wish I knew.
GET THIS WORLD SO FAR I HAVE NOT FOUND THAT MAGIC PILL! The one to make all of us who suffer with this malady of MS to feel better. What a fool am I for trying. I do believe I have learned my lesson...nothing will work. 

Good night to all and to all be well, sincerely! 
 

Thursday, September 3, 2015

Sizzling

The air is sizzling!
Hot stuff!
Steamy, as if a sauna!
Gotcha?

Today we took a trip to Venice, Florida that is; about forty minutes north from here.
I had that appointment for the neuro-othalmologist it was three hours of testing and I was sent home with scripts for more tests, one with certain blood tests five different ones, including B-12, paraneoplastic panel and heavy metal, ANCA and one other. 

My tests there proved that my optic nerve is slightly damaged, but others were inconclusive thus the remaining tests and an ERG one too: "Electroretinography (ERG) is an eye test used to detect abnormal function of the retina (the light-detecting portion of the eye). Specifically, in this test, the light-sensitive cells of the eye, the rods and cones, and their connecting ganglion cells in the retina are examined. During the test, an electrode is placed on the cornea (at the front of the eye) to measure the electrical responses to light of the cells that sense light in the retina at the back of the eye."

Thanks to:
 http://www.medicinenet.com/electroretinography/article.htm#what_is_electroretinography

My eyes were dilated so this is difficult, and so now I will wish you all a very good night and ask you all to stay well!

Wednesday, September 2, 2015

Fred is dead!

Or will be soon, oh by the way, Fred is the once hurricane now tropical storm way way out in the Atlantic Ocean!
And thankfully as I write tonight no more are out there at this time, wow, great!

Lots of people worry about this time of the year for nasty storms, since historically they have been here, but not right now.

Moving on...


 

This is an image that made many wonder where it came from and why it was in our Florida eastern sky, everything from aliens to meteors crashing onto our beloved state was guessed to be the cause, but alas it was just the remnants of a rocket going up at Cape Canaveral on the space coast. Apparently, due to odd humidity and other conditions left from Erika, that tropical/hurricane storm and so the timing was just right to leave this image, a considerably unique one that many photographed.

Moving on once more...

My personal life has been pretty much stagnant as far as my own health goes that is with my legs and right shoulder problems of numbness and pain; causing sleep at night to be very restless and not pleasant or beneficial. I did have a new symptom of cold feet today and solved it with wearing socks and after my morning shower it appeared to be fine with socks put on again. My fever has been constant again in the afternoon and no one has that answer; today it was 99.9 F, crazy since I have been on antibiotics twice, and even thrice if you count in my IV during surgery. I am taking the Tylenol and the extra Gabapentin but nothing seems to help...I wonder what will be next, truly?
My body is saying I am done once again so...
Good night to all and to all be well please, sincerely!




Tuesday, September 1, 2015

Visit!

Number One Son stopped by for a six and half hour visit, shucks I will take whatever we can get! It is rejuvenating!
Always a nice cheerful semi-surprise; meaning not planned well in advance.
Sadly, I was not able to do much so he and Hubby took care of lunch and an early/our usual dinner, dishes and all.
Although, Wally's Barbecue was picked up as the choice for dinner; the one just around the corner with the chef being Cordon Bleu trained with very good quality.
Lunch was sandwiches and salads.

Hubby went rogue last night and picked up vanilla ice cream at Publix with chicken and salads and A&W root beer for floats. I had a small scoop of vanilla with sprinkles, wasn't in a float mood.
I did eat lunch, including melon, but dinner I pushed off to Hubby to finish. I do love the ribs and sweet potato but even half was too much.
Probably a good thing for me. 
I don't get out much with the way I have been feeling, only doctor's appointments.
 
Last night I did hear back from my neuro's office and I will be having another sooner than November, an appointment this month.
This week is the neuro-opthalmologist four hours of testing, paperwork was mailed to me and filled out, next week is my ophthalmologist-surgeon who is sending me to the specialist appointment.
The report should be in by then.

See  all doctors.
And sadly it looks as if I will be also going back to my orthopedists due to my shoulder. I hate all this, but I truly think that when they transferred me in the OR to the gurney they tore something in my already bursitis slightly torn muscle shoulder. I told them about my cervical stenosis, but forgot to tell them about my shoulder...and so I have been taking the additional Gabapentin and extra strength Tylenol and icing it night and day, still very painful.
In fact, my ow-ing now says that I am done for tonight!
Good night pals.
 

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