Wednesday, November 21, 2012

The night before, the day of...


Sorry! I bet you thought that I was going to start tonight with some bold statements about the night before…Still nothing on the topic of the day of; I’m saving it up for the ‘day of’, okay? By now, it better be pretty spectacular, huh? Moving on… More irks: while watching the news a little while ago they had two parents at the airport waiting for their adult daughter to arrive, and they had on silly hats or something like that… And when the daughter arrived she too was wearing a silly hat and they all hugged and said they do this all of the time to make the occasion of her arrival fun! Wonderful idea, I say! Then the reporter also added that the mother, about fifty-ish who also happened to have Multiple Sclerosis, Gosh you would never know. The reason I said this is she looked as healthy as could be, no cane, no brace, no walker, no wheelchair and she recognized her daughter immediately, so it appears her eyesight was also still in good shape. This always fascinates me and makes me sad, for the ones who have to deal with the affects that I must deal with daily as I mentioned above… it makes it look like we are not trying, why you may ask? Since the tag line to the news item was, “And she never lets her MS get in her way.” So I am pissed… cringe factor here…, sad, but true and it hurts to the quick! Everyone with this illness has a different experience and sure we are all brave souls dealing with life’s curveballs, what choice do we have, but to say that a person who looks like that … oh I don’t know… Helen Keller was my hero. And what she did was incredible and worthy of praise. None of us give up, if we truly have the desire to survive, and it is in all of us human beings, but at times we get slapped down with reality, but always pick ourselves up and go on…! It is truly exasperating to try to get people to understand the differences in people’s symptoms with this disease…but there are several good books out there to read if you care to know more and I wish some media people would… since it hurts when they make us others feel less than what we are, struggling each and everyday to get out of bed, to see, to not fall out of our chairs or down etc... Another thing that I still feel badly about is not saying yes, to donate to so many organizations. You see, although I went on social security it is still not that much and after I use it for my insurance and Hubby’s new smile and some other bills, nothing is left, although Hubby has his pension and social security and Medicare that pays for everything else… and now I even have this $2000 deductible for the year and the same for being hospitalized and so we have to be real careful, not such a windfall after all….and so when someone calls asking for a donation I genuinely have to say that we are tapped out, but we had donated to the Red Cross for the hurricane disaster relief, before I knew that I needed all these tests and an 80/20 split. I just feel to not get into a hole with finances we have to be quite selective in what we do with our money. And so far that has worked for us. On that note of hope and trying to know limitations without throwing caution to the wind, allow me to be the first to wish all of you a very happy good night and ask you kindly to count all your blessings and share those overages and we will too! And next time please be here or be square, ya hear!

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Speaking My Mind: Pictures from yesterday!

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