I have been considering how to explain what some Multiple Sclerosis persons may be going through daily, although each one of us that have MS have their own unique perspective on how we handle the symptoms. And their level of how they feel is totally different from one to the other, OK, got that?
Optic neuritis is misunderstood as being not that serious and so I will start with that.
The one on the left is what I see with my right eye since having optic neuritis last summer that the infusions still have not helped. Not bad you say, get a corrective lens like the rest of us do with nearsightedness and all will be well or eye surgery like they have for cataracts or now Glaucoma and it should be just okey dokey! This is neurological and the optic nerve goes to the brain not within the eye itself. And so no, not yet, since there is no corrective lens that has been made for this yet and no surgery either and so here I am with one eye legally blind, which is non-corrective. That is why when I say when my left eye is playing tricks on me I am concerned, because we all know when two don’t work…you got BUPKISS!
Now I will continue to try to get on with this visual demonstration.
It was quite challenging to try and explain what those bands or hugs that we get feel like since they not only encompass our limbs but our bellies and chests; the worst is the one that I get thankfully not too often around my neck, but I think I found a couple of examples of how that would be pictorially expressed;
Yes! That is what it feels just like!
Having numbness causes a whole bunch of social non-acceptable problems, like clumsiness, in other words dropping things and unfortunately as a diner guest this could happen:
And so many will stop asking you to even come over.
Your hearing may come and go too, not because you are deaf, but it is also part of the CNS or central nervous system to some extent, and for me at times it feels like the fullness in the ears you get when going on an airplane and also temporary earaches for me that come way too frequently. Neck and back pain and also hip pain are nasty indicators that you are in for it. The spasms feel like the worse muscle pulls charley horse that you could ever imagine and they come in everywhere, toes, neck, back, calves, arms you name it wherever you have one that is, muscle i.e. NO fun!
But alas here are some sites that you can copy and paste and get more information that is helpful if you too have MS!
http://www.webmd.com/multiple-sclerosis/features/when-ms-attacks
http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm226755.htm
http://my-ms.org/sensory.aspx
http://www.sharedsolutions.com/
My daily injections
Our daily oral medications:
Hubby and I Thanksgiving 2005:
And me are you ready for it... drum roll please.................................................................................................................................
TODAY!I suppose the mystique is dead now...oh well all good things don't always have to come to an end; close your eyes! Too late,LOL!
On that note of hopefully not frightening you too much; you see in my opinion medical aid can sometimes help and sometimes hinder and I just want to say right now I am wondering… which is happening to me.
If not or even if so, take care, be well, be happy and may peace be with you and yours and count those blessings and share those overages and we will too!
And next time please be here or be square, OK?
PS Hubby stills looks the same as always that is why no current photo was necessary in the publishing of tonight's blog
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