I seem to be having an emotional and physically not too good day.
Let's face it I awoke with stiffer arms and legs than usual.
Even with my usual movements that have helped in the past, today they did not seem to do that for me this time.
Although, I take nearly half my old dosage of the Baclofen still, at 40 MG. daily; when originally months ago it was 70 MG. and although back on the Gabapentin it too is less but back up to 1200 MG., it had been at 1800 MG. prior to my first time weaning myself off last winter.
I am beginning to wonder if I had made a mistake, with weaning then completely and then going back and weaning again and having to go back, twice prescribed by my old neuro, but this last going back was my own decision, albeit approved by this new neuro when told my reasoning and the fact that I had not been told to wean myself off again, actually both times were my idea, not the doctor's.
Sometimes we make mistakes, and all I am asking for is guidance from someone I respect that is more knowledgeable than myself. So I hope this new neuro who has been in practice nearly forty years will be able to help me figure it all out...even my fingers are double hitting this keyboard without me making that decision, it is scary uncontrollable when it happens daily, when I am overtired I think
This will be done shortly, due to how I am feeling, and that is poorly.
I am writing from bed now and even while here it is not too comfortable, with my laptop on my chest.
Moving on...
The opening of the 9/11 Museum was today and was a sad remembrance of that horrific devastation of so many lives lost. We had indirectly known people lost at all three crash sites and perhaps that may have added to my personal sadness of frustration of this disease and it being affected by the slightest thing, such as weather changes outside... as well as major sad historical events.
I am a wimp!
On that note of trying to find some hope, allow me to be the very first to wish all of you a very happy good night and may I ask you to kindly count all your blessings and share all your overages and we will too!
And next time please be here or be square, ya hear?
Let's face it I awoke with stiffer arms and legs than usual.
Even with my usual movements that have helped in the past, today they did not seem to do that for me this time.
Although, I take nearly half my old dosage of the Baclofen still, at 40 MG. daily; when originally months ago it was 70 MG. and although back on the Gabapentin it too is less but back up to 1200 MG., it had been at 1800 MG. prior to my first time weaning myself off last winter.
I am beginning to wonder if I had made a mistake, with weaning then completely and then going back and weaning again and having to go back, twice prescribed by my old neuro, but this last going back was my own decision, albeit approved by this new neuro when told my reasoning and the fact that I had not been told to wean myself off again, actually both times were my idea, not the doctor's.
Sometimes we make mistakes, and all I am asking for is guidance from someone I respect that is more knowledgeable than myself. So I hope this new neuro who has been in practice nearly forty years will be able to help me figure it all out...even my fingers are double hitting this keyboard without me making that decision, it is scary uncontrollable when it happens daily, when I am overtired I think
This will be done shortly, due to how I am feeling, and that is poorly.
I am writing from bed now and even while here it is not too comfortable, with my laptop on my chest.
Moving on...
The opening of the 9/11 Museum was today and was a sad remembrance of that horrific devastation of so many lives lost. We had indirectly known people lost at all three crash sites and perhaps that may have added to my personal sadness of frustration of this disease and it being affected by the slightest thing, such as weather changes outside... as well as major sad historical events.
I am a wimp!
On that note of trying to find some hope, allow me to be the very first to wish all of you a very happy good night and may I ask you to kindly count all your blessings and share all your overages and we will too!
And next time please be here or be square, ya hear?
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