Speaking My Mind: Talk about adding insult to injury!

As many of you know I have Multiple Sclerosis currently Secondary Progressive inactive that might sound good to some, but in actuality means there are no medications to help me at this time all pain meds which I am on, and I will not have a remitting period only a steady decline in physical abilities. But will live a normal life span, WOW! I also have spinal stenosis that I had RFA Radio Frequency Ablation on both my neck and thoracic region last year. Unfortunately, I believe my fall undid any good that may have done.

Any-who, since November I have added additional symptoms of the many listed with MS my two recent ones are Nystagmus and Essential Tremor.

You were right if you guessed dancing eyes and body, with or without music mostly without, bud dump bum!

Since then I have fallen, December 19, 2018, in the bathroom hitting the back of my head and my middle, thoracic portion of my back causing more pain. I did have X-rays of my back but not my head. Although a week before I had had my yearly MRI of my head. So although it showed nothing was broken, my head was not checked and my back still hurts to this day in spite of my heavy duty medication for pain 1800 mg. daily of Gabapentin, 80 mg. of Baclofen daily and .25 .25 of Zen cannabis oil, and .25 of Relief cannabis oil daily and nightly since March 9th! Some days, not enough medication! The treatment does not match its pain protection.

To write this is often quite challenging but makes me realize I do have to push myself.
I see my neuro this week and I have so much to tell her and ask.

So what does someone like me do to cause my title to be validated, one might ask?

Body control as you all might well imagine can at times create difficulty in physical bodily control, hmm? So first I opened the door yesterday morning to move the laundry from the washer to the dryer and I smashed the door into my head and fell back onto the recliners, and stayed for quite some time. I told Aussie to get Daddy, but he chose to not leave my side!

Oh, I use my walker in the house since our home is circa 1958 and has very narrow doorways...so I am unable to use my motorized wheelchair in the house, it currently lives in our van. Even the manual wheelchair is too wide for the doorways!

But I manage.

This head hit was to my left side of my forehead two days ago, still sore.

Icepacks are my friends.

But even I know you cannot use them indefinitely!

Right at this moment, my eyes have decided to dance a bit too much! Hard to write when your eyes not only dance but they're most recent routine includes open and closing at will, they'res!

Thanks, Grammarly for being there when I need you constantly!

One night I will not correct all my mistakes and so you can see how bad this could be, yes, even worse than it is! HA!

Alright, enough already!

Thanks for listening/ reading.

Just knowing you are all there for me is so refreshing to my soul, and that anonymous sounding board you create for me is why I chat you up nightly!

So in closing, I want you all to know how important you are to me!

But sadly while dealing with my own issues, many of you too have had to deal with heartbreaking news. One of my FB friends grandson, six weeks ago, only fifteen months old drowned in the family pool in NJ! Any parents/ grandparents worse nightmare!

And another FB friend has diminished her time on FB due to her MS getting the best of her! She has the Progressive form that starts off bad and gets worse faster than even mine, May 7th she left FB!

Horribly, I was totally unaware due to my own concerns.
Failure to be even a good FB friend!
For that I am ashamed.

In spite of that... Happy good night all!

Count those blessings and we will too!

And next time please be here or be square, ya hear!