Bloodsucker!

Ten vials worth was taken from me for testing that will take six weeks to get the results!
The vampira, Nancy, had to get special verification and use different size tubes to take my ruby liquid life's force for an examination and a trial to see what's what and causing me NOT to be ME!
Yep a trial of vials! The delay of outcome has not been told; it makes me feel as if I am living ye days of olde.

My fear is with my wee brain Googling all these symptoms verified by all thee doctors and me trying to take the mystery pieces of the body crime to find is causing me to lose all my normal lifetime! 

Shall I be an idiot instead and pretend to not know that all these symptoms do spell out many serious problems that have to be addressed!

Many already are or have been, but not all things tried worked.

Oh I forgot to tell that my neuro doc took me off of the Ampyra yesterday due to what we both suspected that it could be causing my latest problems, the leg paresthesia with burning twisting sensations, now in arms and lower extremities( knees to feet) that used to be fleeting but now is constant and has not gone away. 
So far there have been only two pills not taken of the Ampyra, since I was told to stop after my morning one was taken at nine A.M.yesterday, so last night's and this morning's were not taken.

I suppose after calling the company, Acorda, last week, and having spoken with their pharmacist and of course they support their product, but did verify that it was one of its many side effects.

Today, I Googled others who did not walk better with Ampyra but also ironically got worse, and even after stopping it had not improved sadly, meaning the side effects did NOT go away. 
Oddly enough it had been developed to help people with Multiple Sclerosis walk better, and for only that purpose.
In fact what many were saying is that it worked only 30% of the time; it is also sold in Canada under the name Fampyra as well as the UK under that name and has been here in the US and approved by the FDA since 2010.

So I am not sure what will become of me? 
This newest evolution of my being is most upsetting and not at all what I was hoping for...oh well...I wish I knew.
GET THIS WORLD SO FAR I HAVE NOT FOUND THAT MAGIC PILL! The one to make all of us who suffer with this malady of MS to feel better. What a fool am I for trying. I do believe I have learned my lesson...nothing will work. 

Good night to all and to all be well, sincerely! 
 

Sizzling

The air is sizzling!
Hot stuff!
Steamy, as if a sauna!
Gotcha?

Today we took a trip to Venice, Florida that is; about forty minutes north from here.
I had that appointment for the neuro-othalmologist it was three hours of testing and I was sent home with scripts for more tests, one with certain blood tests five different ones, including B-12, paraneoplastic panel and heavy metal, ANCA and one other. 

My tests there proved that my optic nerve is slightly damaged, but others were inconclusive thus the remaining tests and an ERG one too: "Electroretinography (ERG) is an eye test used to detect abnormal function of the retina (the light-detecting portion of the eye). Specifically, in this test, the light-sensitive cells of the eye, the rods and cones, and their connecting ganglion cells in the retina are examined. During the test, an electrode is placed on the cornea (at the front of the eye) to measure the electrical responses to light of the cells that sense light in the retina at the back of the eye."

Thanks to:
 http://www.medicinenet.com/electroretinography/article.htm#what_is_electroretinography

My eyes were dilated so this is difficult, and so now I will wish you all a very good night and ask you all to stay well!

Fred is dead!

Or will be soon, oh by the way, Fred is the once hurricane now tropical storm way way out in the Atlantic Ocean!
And thankfully as I write tonight no more are out there at this time, wow, great!

Lots of people worry about this time of the year for nasty storms, since historically they have been here, but not right now.

Moving on...


 

This is an image that made many wonder where it came from and why it was in our Florida eastern sky, everything from aliens to meteors crashing onto our beloved state was guessed to be the cause, but alas it was just the remnants of a rocket going up at Cape Canaveral on the space coast. Apparently, due to odd humidity and other conditions left from Erika, that tropical/hurricane storm and so the timing was just right to leave this image, a considerably unique one that many photographed.

Moving on once more...

My personal life has been pretty much stagnant as far as my own health goes that is with my legs and right shoulder problems of numbness and pain; causing sleep at night to be very restless and not pleasant or beneficial. I did have a new symptom of cold feet today and solved it with wearing socks and after my morning shower it appeared to be fine with socks put on again. My fever has been constant again in the afternoon and no one has that answer; today it was 99.9 F, crazy since I have been on antibiotics twice, and even thrice if you count in my IV during surgery. I am taking the Tylenol and the extra Gabapentin but nothing seems to help...I wonder what will be next, truly?
My body is saying I am done once again so...
Good night to all and to all be well please, sincerely!

Visit!

Number One Son stopped by for a six and half hour visit, shucks I will take whatever we can get! It is rejuvenating!
Always a nice cheerful semi-surprise; meaning not planned well in advance.
Sadly, I was not able to do much so he and Hubby took care of lunch and an early/our usual dinner, dishes and all.
Although, Wally's Barbecue was picked up as the choice for dinner; the one just around the corner with the chef being Cordon Bleu trained with very good quality.
Lunch was sandwiches and salads.

Hubby went rogue last night and picked up vanilla ice cream at Publix with chicken and salads and A&W root beer for floats. I had a small scoop of vanilla with sprinkles, wasn't in a float mood.
I did eat lunch, including melon, but dinner I pushed off to Hubby to finish. I do love the ribs and sweet potato but even half was too much.
Probably a good thing for me. 
I don't get out much with the way I have been feeling, only doctor's appointments.
 
Last night I did hear back from my neuro's office and I will be having another sooner than November, an appointment this month.
This week is the neuro-opthalmologist four hours of testing, paperwork was mailed to me and filled out, next week is my ophthalmologist-surgeon who is sending me to the specialist appointment.
The report should be in by then.

See  all doctors.
And sadly it looks as if I will be also going back to my orthopedists due to my shoulder. I hate all this, but I truly think that when they transferred me in the OR to the gurney they tore something in my already bursitis slightly torn muscle shoulder. I told them about my cervical stenosis, but forgot to tell them about my shoulder...and so I have been taking the additional Gabapentin and extra strength Tylenol and icing it night and day, still very painful.
In fact, my ow-ing now says that I am done for tonight!
Good night pals.
 

The time has come to try...

...to think clearly in spite of my so-called adversity.

ad·ver·si·ty

/ədˈvərsədē/

noun

• 1. difficulties; misfortune "resilience in the face of adversity" synonyms: misfortune, ill luck, bad luck, trouble, difficulty, ... more

Powered by Oxford Dictionaries 

Yep, I seem to vaguely fit into that word's confines.

 Any-who, I shall go on...

Today was another day, not unlike many before its arrival.
Why is that?
Many might ask, but no not you, I think I know you all well enough to know you would not ask, since you have very logical reasoning and the ability to rationalize why something occurs or not, true?

But in spite of that I will tell the tale of why most days are similar to one another...You see, the days have so many hours allotted to them and that would also include minutes as well as seconds that are nearly identical, got that?
Now in order for a day to be even the slightest bit different from its neighbor prior to or after of its moments in the time space phenomenon or continuum it must be interjected with happenings unrelated to its previous or future selves, understand?

Happenings are influxes of actions contributed by patrons or users of these said days.
When no actions occur these days become identical and therefore not different so as one could tell unless extremely acute in differentiating skills.  
Thus, many of ill will become stagnant and assume they are in a black hole type situation where duplicity or constant duplications of their days are relentlessly continued and then dispersed. Not dissimilar or alike to the movie, Groundhog Day, circa 1993:https://en.wikipedia.org
/wiki/Groundhog_Day_%28film%29 

But in my case not as exciting, horifically.
Geez that word, "horrifically", does give an image of more exciting than what I stated...let your mind go wild with that!

In closing, no matter how one's day goes, it usually always does, and that is the same for each and everyone of us, so in order to change yours into something more interesting DO SOMETHING!
Ordinary is better used in your .......wait NOTHING, it is a very blah word, so make your own happenings daily and don't look back, we all get the same amount of hours, minutes and seconds daily so use them to their fullest! 

On that note of much thought and rethought using a lot of huhs allow me to be the very first to wish all of you a very happy good night and ask you all to kindly count all your blessings and share all your overages with you know whom and we will too!

And next time please be here or be  square, ya hear!

Anticipation

 Of rain?
Erika called it quits yesterday.
Dark clouds are now just arriving here.
We had been told that we are under a flood watch for the last few days in spite of Erika diminishing. 
The sky does have an ominous look to it, forboding. 
Yes, but so far we are lacking in moisture.
Now the thought of being careful of what you wish for, no I am not wishing for rain or a storm, just wondering about all the hullabalou. 
Hurricane and storm possibilities were cancelled, and you would think you could cut the disappoint factor with the meteorologists and news anchors with a knife, sooooo thick and sooooo sad, no chatter of being careful to us their public.
Normal afternoon rain is so ordinary.
Their excitement with the possibility of a major weather story is palatable, but has fizzled with our ordinary weather.
Fred is now in the north Atlantic but has nothing to do with us...yet!
Male then female and then male and female names for these systems and yes we are already up to "F", Fred, a tropical storm but far, far away...
As I write now/tonight the rain has finally arrived after all, thunder and all, lightning too.

We will have more rain in the morning too!
Scary!
Not really.
Apathetic to the rain.
Gus is not, he is frightened, and it is true that actually I am too!
Not the rain, nor the thunder (Gus thunder too), but the lightning, as we all know that is the bad stuff.
Although, being waterfront and only at a nine foot elevation above the waterline I suppose with the threat of flooding it should be concerning, but we are saltwater waterfront not fresh land locked water front, and so no storm surge without an actual storm, true?
So I will stick with my fear of lightning, only.
It can go through water pipes, electrical lines, windows etc...
So being inside is better, but not totally safe either!
Our electrical items are hooked up to special surge protectors, but we are not! Someone should invent that!
Yep, that is my reasoning and no one can talk me out of it!

On that note of whatever...allow me to be the very first to wish all of you a very happy good night and ask all of you to kindly count all your blessings and share all those overages with you know whom and we will too!

And next time please be here or be square, ya hear!
 

Trying hard to be...

...something that I am not!
And that is someone who doesn't say anything about their pain.
So sorry people I am in horrible pain and this from a woman who had two four and half month miss-carriages!
And labor for one of our full-term sons for twenty-nine and half hours!
But that was worth it, due to having a beautiful healthy baby after! (The other one was only four and half hours of labor, much quicker.)
So when I say that I am in a lot of pain I do have a reference.
This is also from a woman who walked on a broken leg for two days! 
Please understand I am only explaining due to people making light of pain.
The hard part is that I am also well medicated and still have continuous pain.
Burning, twisting, gnawing, pain as if my skin is being ripped off of me, my legs that is. My right shoulder and wrist and hand make this very difficult, but for some crazy reason 
And I am not alone with this, many people suffer from this, and are told to buck up and basically to shut up.
Or go to pain centers that fill you full of more injectable high test drugs. 
Doing the simplest task calls for icing.
I still have that mysterious low grade fever even after ten days of antibiotics, daily in the afternoon.
I am waiting to hear back from my neuro's office that I called
yesterday.
I have spoken to the pharmacist with Ampyra my newest medication to see if that could be causing this or stress from all the surgeries and infection creating another exacerbation of my M S, both are possibles so that is why the call to the that doctor.
I even heard back from the Copaxone people who have been supporting me these last five years, but so far no doctor.

Frustrating, don't want to lose another one. 

This is more a spilling of feelings than anything else.
Thanks for listening.
 
Good night.