Weak and exhausted

Eating light, but very little.
In and out of bed all day.
Last night's sleep was restless.
Although, no longer exploding; exhaustion is extreme.
Hope this is not going to last too long...
TTYL

Exploding orafixes!

Thought I was better, but oh no!
This morning my body betrayed me again!
New symptoms, diarrhea and vomiting; adding to the sneezing and coughing!
But no temperature and no bellyache.
Spoke with the pros... liquids, but no Jello or tea. Call doc back in the morning, concerned with me becoming dehydrated...!
Club soda and chicken soup only.
Imodium re-administered after body dismissed it!
TTYL

Determination!

Whether you are a human or a critter it appears that either way when faced with the worst of situations they/us will be brave!

Most of us who presumed, that life has dealt us a harsh blow in life; it is not always the correct presumption, but in spite of that thought process somehow we all learn to persevere for reasons on occasion unbeknownst to our own selves.

In the animal kingdom they too have those survival skills and constantly remind us all that we as living things don't take our lives for granted or interlopers invading our beliefs or safety of how things should be without intervening on our own behalf.

Classic behaviors are any parent protecting their child human or animal, fighting for your love or protecting your homestead.

All common for man/woman or animal.

Domesticated animals take that one step further, they protect their humans and we humans protect them as well!

Amazing!

The news always seems incredibly impressed with the behavior of continuing to wanting to survive no matter what horrible circumstance might have befallen you, animal or man/woman.

Beyond belief people treat each other badly as well as our animal friends... And these somehow make the news with shock in their voices expelling the treacherous ways people treat each other or their family pets or other animals that have done nothing to deserve any of it; all of the inhumanity in this world.

Sadly, this is not unique and way too common.

And that is where we and the animals part company or similarity to each other. They will never harm another one of them for the thrill or meanness for lack of anything logical. They would only be aggressive to protect their own or to feed their family, not just for the heck of it! 

So if anyone ever compares you to an animal, thank them.

Now if they compare you to a human... be careful!

We, I would like to believe like my Dad did say that most all of us, 99% are good, but that last 1% WATCH OUT!

Survival has much to do with how we perceive how we are being treated and so when things are WONDERFUL, we are chipper as all get out. But cross us with meanness and violence than we tend to err on the side of PROTECTION!

Yes, determination is a lovely word, which means strength of mind, willpower, resolve, purpose, fortitude, and grit!
And so it is definitely an attribute that one should strive for, no matter what!
Why not?

Nothing can stop a person with it or an animal either and as long as we, humans use it for good, I still say, why not?
My new rallying cry, which I want to be determined to do.
Yes, do, anything and everything that MS thinks it can stop me from do-ing, how about that Multiple Sclerosis? TAKE THAT!

On that note of more hope to carry on as we all should, allow me to be the very first to wish all of you a very happy good night and we will too!

And next time please be here or be square, ya hear?



 


 

Milestones are becoming the norm around here!

Sure today was a follow-up to the follow-up of my office visit for my cataract surgery.
Cataract surgery sounds so common and ordinary, when mine was much, much more than that!

It was more like a perceptually remedying a so-called futile problem with it being obliterated, cancelled!

My eye was misbehaving a wee bit with swelling causing my 20/25 eyesight to appear to be a slightly lesser 20/30.
Still healing I was told…great, because I got a wee bit concerned.

I was told that the Travatan medication was no longer needed my eye pressure was fine.

This time I arrived via my scooter!

It had been months since I was able to confidently use it without bumping into people or things! It was used since the doctor’s office is quite a walk away from the parking lot…
Heather and Jill both felt that it would a wonderful idea to write an editorial comment, like I used to do often; about my experience as a celebration and this evening I did. When I asked for their input on how they thought I should celebrate.

It is already on its way to the Charlotte Sun Herald Newspaper, to Brian Gleason, the editor in-charge of such things. The criteria had not changed in all these years, with the 250 words maximum (which was always difficult for me, but I did do it!) and your name and city included in the item. I so much enjoyed writing those by-lines better where the perimeters were so much wider, word wise.

Hubby insisted that we go out to lunch and so I agreed this time, when everyone concurred that my eye was not that bloodshot anymore, and so we went to Chili’s.

And I had Hubby place my walker into the car too before we left home since for short distances I thought I could try that as well, and he did find a spot right out front across from the entrance and I did it!

Although, the server did first try to seat us further into the dinning-room at first, but I wimped out for a closer seating place. I confessed that it was my first outing without my wheelchair.
I sat across from Hubby with my right side on the aisle, my used to be blind side, but not anymore!

I ordered their spicy shrimp tacos that I had weeks or months ago that were great!
And Hubby chose a half sandwich, turkey club with their cheddar potato soup.
Hubby had his usual cup of java, sugar no cream, and I had my unsweet iced tea with extra lemons.

When we arrived home, I must admit I was pooped.
But in my mind I was already thinking on how to give myself a facial with homemade ingredients like I used to, once my eye is all better… it’s is tough even in the shower where I wash my hair keep the suds out.

I know I have to do something, with this new x-ray vision it appears my skin has been terribly neglected and fortunately I can now see it all! I almost said ‘unfortunately’, shame on me!
Weight of course is a priority, and I had a glimpse of that issue too, and sure I would love to get back to the gym/rehab or even just walk the neighborhood… but I am still, yep still congested and on Mucinex as per doc Nord.

And with us warming up as usual I have my heat problem, of course...

I could try five minutes one way and then five minutes back. When I walked years ago I did that and got myself up to an hour and half then, until my hips gave out and was told to stop!
I have never ever wanted to be sedentary, but my body tells me bad things too often… I still have time to figure it out though until my next appointment I am on hold… for that anyway.

Oh, another BIG milestone today was the beginning of the Copaxone 40 MG. today, only three injections a week, Monday, Wednesday and Friday, instead of the Copaxone 20 MG. daily shots!
I called the Shared Solutions the patient helping associated company with TEVA, the pharmaceutical company that makes the Copaxone like I was asked to, and their reasoning was for them to add it to my information file.

On that note of many notes allow me to be the very first to wish all of you a very happy good night and to ask you to kindly count all your blessings and we will too!

And next time please be here or be square, ya hear!

How does one celebrate a somewhat miraculous occurrence?

 


Sure many things in life are considered miraculous, a baby being born healthy, a person recovering from a thought to be fatal disease, a person surviving an accident... you get the idea...And in most every case one would like to think that those involved had a way to commemorate the amazingly wonderful occurrence, wouldn’t you?

And although my small miracle of last Friday the twenty-eighth of March was not a life and death happening, but to me and my immediate family it was an extremely special, never thought it could ever be thingy! Which by even minimal standards it is important in the bigger picture of life’s commemorated personal historic events, hmm? 

It's not everyday that one of my years who was basically told to "forget about it", I am hearing in a Tony Soprano voice/accent. But having that little voice inside of me yelling instead, "NO, I WON'T!"
And sure enough when given the chance to change my doomed for existence of being perceptually challenged forever I felt the need to try for more even when told that only a little might happen.

Some may have believed that I was a foolish gal and others may be thinking why did it take so long to go forward? 
I have told why in my previous blogs...
Once more I was told that the optic nerve was dead and even if the cataract was removed it would make no difference.

It is more than wonderful that I had a NEW doc, Klein, who did a low tech test that showed him that my eye was contracting according to how he moved a small simple flashlight. None of the others, two eye doctors, or my former neurologist was able to tell?

Any-who, for fear of beating this proverbial, 'dead horse' to death again, let me remind all of you as well as myself the motivation for tonight's question that truly needs a very special suitable answer.


And a delay in the celebration is most important too, since my magical mystical eye with the sight is still healing and looks that way...

I suppose allowing it to go and just accept the tremendous fact that I can see now and well with both eyes is just something to be grateful for, without any hoopla, but for some reason it feels that it's taking this wonderful thing for granted, ya know?

I'm by no means religious, and anyone who knows me will tell you that, but for some reason it just seems it should be respected with some acknowledgement, ya know?

Too many milestones in life we might forget if we didn't honor their happening in some way, as if caring is just as important as what did occur too.
It's human.

And so even if no one answers me as many don't, I will try to not let this very important thing in my life not be forgotten.

So on that note of some note, allow me to be the very first to wish all of you a very happy good night and ask you kindly to count all your blessings and we will too!

And next time please be here or be square, ya hear?

EYE DROPS!

Anyone might tell you that their doctor gave them such and such drops prior to cataract surgery and such and such after the surgery too and all do as far as I know, since this is my second time going through this.

Although, my previous experience was totally different, as most people will tell you too. For me it was with two different doctors/surgeons in two different counties.

I was almost elated to know that the caviar priced teensy bottle of Besivance, an antibiotic the first on the left in the above PIC, would be used until done, with no need to for refills as of yet. At seventy bucks a pop that was more than refreshing to know and that was with my insurance, otherwise it would be $150! (three times a day till done/gone)

Durezol right next to it is a steroid medication and also was quite expensive, but the first one was a sample with a gift card worth $160 bucks the doctor's office gave to me, even so it was thirty-five bucks, otherwise $125, for another teensy weensy amount too! (three times a day for proper healing, instructions: do not stop!)

The Travatan is to prevent pressure in the eye and is used one time a day at bedtime. I was given a sample; so far no more was expected to be used after this is gone/done.

The other two are non prescription over the counter drops for dry eye and can be used whenever I want or need to, and the larger bottle was mine to begin with, the Blink and the other was one of two samples from the doctor's office.

Anyone who takes medication as much or even a little sometimes suffers from dry eye issues. And I have had doctor's try all sorts of methods to help mine, but the drops seem to be the one thing that does work when I remember to use them.

My eye is still as red and raw as last night's picture of it and I didn't feel it necessary to show you that again. 
And yes my eye is still sore, but my eyesight is still amazingly TERRIFIC!!!!!
Patience has never been my strong suite, but I have no choice,and I wouldn't have not done this even with the pain I am experiencing. This doctor Klein is too good to be true, he accepts phone calls 24/7, and his tech, Jill, attested to that! With saying as I always say that there are no stupid questions ever.


But I some how feel that I don't want to take advantage of this too good to be true doc, been there done that... you all know me!

So any-who, I have resigned myself to a singular capsule of 500mg. of Tylenol when absolutely necessary. The directions say to take two.

On that note of time will be on my side this time, I truly feel...and so allow me to be the very first to wish all of you a very happy good night and all of you to kindly count all your blessings and we will too!

And next time please be here or be square, ya hear!
 

I can see clearly now! ♪♫ ♪♫ ♪♫...

Almost there as you can see above my eye going through the surgery is still recovering and right now looks angry red! I have several drops to put in during the day and at night and that darling hard patch thingy still have to be worn for six more nights only!

Oh for you who do not follow me on Facebook I am here this evening with miraculous beyond belief news!
We went to the doctor's office this morning so he could take the patch off and check my eye and what happened next was earth shattering ... not only could I see my hand but everyone and everything and the BIG E was a meek minuscule desire forgotten swiftly... the informal test appeared to indicate that my righty was seeing 20/25! Normal eyesight is 20/20, as everyone knows! Considering when last tested, prior to surgery, mine was something like 20/800; this was truly a miracle or was it?

You see, after my initial bout of optic neuritis back in July of 2010 and after the IV steroids treatment that did not work at that time. My next brain MRI in February of the following year 2011, according to my former neurologist who stated that my optic nerve was dead and that they do not regenerate. You see, in the interim and before it was an absolute on the optic neuritis unbeknownst to her I went to my ophthalmologist surgeon, he had done my cataract on my left eye in January of 2010, who had concurred that I did indeed have optic neuritis and that at that time I had a very slight cataract that could not be held responsible for my blurriness. Even another optometrist I consulted too, since I was concern with going on those harsh IV 1000 MG. of Solu Medrol for three days again, and that for my first time I had been hospitalized for their administration back in April of 2009 for an exacerbation of the MS, which left me with a horrible infection, a UTI from the catheter.

As my eyesight appeared to diminish over the years I would consult my neuro and the eye doctors and they would constantly tell me the same thing that although my cataract was now growing larger with the optic nerve not functioning it wouldn't be worth it to remove the cataract.
Before this change in insurance it would have been out of pocket, like in 2010 to pay for the surgery in the thousands, but if there were a chance I was willing to take it, but they kept saying it wouldn't be worth it.

Now with the so-called OBAMACARE and my co-pay of only 200 bucks and my old eye docs no longer on this new insurance so I decided to try an old doctor I went to years ago and he examined me and noticed that my eye contracted with the test telling him the nerve seemed to have something there, but with my now enormous cataract, due to more than likely all the additional IV steroids as well as the pill ones, it was hard for him to be absolutely certain, thus his conservative diagnosis of me possibly seeing the BIG E.

Well, today made it all worth while it was well worth it all!
I will not need any glasses and if my physical therapy helps if I can stay infection free to go back and strengthen my legs I may again be able to drive our car! I will have what I originally had wanted with my left eye as a reading eye/lens, circa 2010, and my righty my distance/lens, circa 2014! Just like when I used to wear my mono contact lenses as a young gal! There are several great things about having permanent lenses,like you don't have to take them out ever and you don't have to take them out ever and you don't have to take them out ever, and also your prescription doesn't change ever! LOL!

I do have a letter/formal complaint going out tomorrow to the state Division of Medical Quality Assurance telling all. 

As far as a legal case goes, according to two attorney offices where we inquired, since I am actually better, not worse, and I did not suffer lasting disability from the misdiagnosis and therefore there is no case. 

On that note of much note, allow me to be the very first to wish all of you a very happy good night and ask you to kindly count all your blessings and we will too!

And next time please be here or be square, ya hear!

PS Thanks to Ron for the title tonight. Can you hear me singing?