Sunday, February 16, 2014

Sour notes do not a person make!

 

Telling it as it is in your own wee brain is personal, and why would anyone in their right mind consider sharing that with anybody else?
You have the answer? Okay, so all you comedians out there are saying, well, she is NOT in her right mind, but maybe in my left? Bud, dump, bum... Oh, I just asked since I thought most of you knew? (I have mentioned it before...) No clue? Neither do I! Ah, some memories are best left alone!

Moving on...

And tonight I wanted to expose the fact that nothing vent worthy has occurred today, hooray.
Other than friending a few more people!
One is still trying hard to enter my realm.

Does anyone know how to change your timeline to allow new friends? The others seem to have no problem, but for some reason neither of us could find that old suggestion button?
We started talking after I read her vented fired up post about someone being fake about concerns with their MS and how they are  dealing with it, but using their celebrity for personal gain instead, i.e. having a procedure that he gets kickbacks from, and not using it in helping financing research etc. and this guy is a BIG personality! I can't even mention his first name, because he is that famous!
And I have no actual proof that what this gal was saying is true, but it did seem plausible to me.    

Any-who, three other people are now my new friends and I will relish getting to know them, really.

Today, I was capable in doing laundry and as for last night I did not need my moist heat for my back pain for the first time since November 26.2013 when the herniation happened! BIG YAYS HERE!
So on that less pain note allow me to be the very first to wish all of you a very happy good night and ask you to kindly count all your blessings and share all your overages with you know who and we will too!

And next time please be here or be square, ya hear!
Interesting turn of events with these below quotes especially when you see  where who they are from!
Author's disclaimer from last night's angry venting...hypocrisy lives in here...OOPS! 
Read below please:

"Got to keep moving or someone might throw dirt on me." (Although not so much anymore, but moving just enough to fool them!)
"The only alternative to not growing old is dead, so I hope we all grow as old as we can!"
"Keep smiling it fools the brain!"
Those quotations are of my own writings, by the way... I suppose most knew that, if they tried to find out from where they came, LOL!


HYPOCRITE! LOL!RE: last night's blog, shame on me!

Saturday, February 15, 2014

Unfriend from my end and it felt oh so right!

Just now I got rid of a blowhard that insisted that all of us with Multiple Sclerosis should always be happy.
This person does not have MS and yet stated that he has suffered for all us with it, Gosh I hate, (hate is a bit harsh, okay, Dad I hear you), I dislike people who think they are the second coming of the Christian Lord and I am not even a Christian!
Heaven help us all!
He reminds me of one of those fire and brimstone type movie ministers or evangelical ones on TV.
I have no idea what he actually does for a living, but his moniker is to CURE MS, commendable at the very least!
Many of his disciples, I thought I should stay on trend...Any-who, do not even know that he doesn't have MS, another today while agreeing with his preaching said yes that you know for sure as all of us who understand what we are going through, "huh", again I said? I wrote on her personal message board that he doesn't have MS, but she said he doesn't? I thought he did. As many before her did, every once in a while I would let him know that people think that he has it and he would tell them on a one time deal, each time, on a posting that he doesn't...
And so the lesson here is if you DON'T have it don't tell us how we should feel, hallelujah, kidding, about the hallelujah, but not about how anyone should feel who is sick, true?
I told him that I appreciate his cheer-leading but asked what else does he do for us?
You see, it bothered me when he said that anyone who tells you to be realistic wants you to only think what they want, "huh", I said? (PS it is important to know that on an earlier post of his I was the one who said that we should all be realistic about how we feel without guilt and not have anyone tell us how to feel)
And so his reasoning for not being realistic was that people with MS should think for themselves and NOT be realistic, "huh", again from me?

I sure hope that he is donating a lot of money for the cause or writing to representatives like I do with advocacy through the National MS Society online whenever asked. Otherwise if he isn't a research doctor, which I do know for certain that he isn't, at least he has no credentials that say that... he has an awful lot of explaining to do, I suppose what he does is not that dissimilar to wearing a sandwich-board and walking up and down the street with that...and I suppose it couldn't hurt?

Oh well, it is genuinely nice that he does have a desire for telling people to CURE MS, why don't we all do that daily and a trillion times "huh" to that, doesn't he think that all diseases should be cured, now don't we all?

CURE CANCER
CURE HEART DISEASE
CURE STROKE
CURE AIDS
ETC.On and on to infinity!
Am I wrong? Don't we all want these things cured, yesterday? 

I know that I get aggravated sometimes more easily than I should but that is a part of MS and I do have documentation about that, if you care to see it, but really folks I am so upset with these so-called, in my opinion, charlatans infiltrating the Facebook site and so we must all be cautious daily as we have been forewarned, now I sound not that dissimilar to them, hmm, sorry carry-on... but please be careful, that's all!

Fired up tonight it appears with my blood boiling and so on that slightly singed note allow me to be the very first to wish all of you a happy night, not telling, just a suggestion, and  kindly count those blessings if you care to that is, and also share those overages if you want and we will too!
OH no me too! LOL!

And next time please be here or be square, ya hear me, if you feel like it, okay? HA! This is too much... BIG BELLY LAUGH HERE! I feel like my Dad was laughing at me while writing all this, he used to laugh at me when I was too serious and upset about silly things in his book...HA, ha, ha!
 

Friday, February 14, 2014

K and T's Excellent Adventure!




Ups and downs and downs and ups, such is life, love, smiles, tears, belly laughs and anything else one might imagine after forty-seven years of being together and forty-three years of legally being together!

Life and relationships have cycles, not unlike the moon's, and as my Dad used to say "it is always darkest before the dawn" and "what goes up must come down". Well, maybe Dad didn't say all that, but he was a very wise man.

"Nobody's perfect, least of all you, but I am." Bud dump bum... was another one of his jewels. Mom used to say, "never go to bed mad; always makeup."
They had a loving relationship which was memorable... and sadly I am not them!
Sure I always love Hubby and him me, but I am too outspoken and emotional compared to my parents and so our relationship has been anything but smooth sailing, and to tell you the truth we argue loudly and at times with much colorful verbiage! But we always kiss and say goodnight with love! You see we both have strong personalities that can clash and that is more than likely why we also love one another, no wishy washy here ever!

And these last several years have not been what either of us signed on for, chronic illness...sure we said so in our vows, sickness and health, richer, poorer but do any of us really want to believe that could happen, no of course not, not ever!

Any-who, you know something, do you want to know what true love is?
Sticking together in spite of hard times, sure I complain and he does too and it's okay, it can clear the air and usually find common ground if done right!

What my Dad said about not being perfect... duh, is true for all of us and once we realize that anything goes with understanding our quirkiness; for Robert, people who originated out of Paramus NJ are not the only ones! Hubby is from Oradell and he is literally FULL OF IT! Quirky that is, or was that flaky, Gosh, I forgot. Not too different.

Anyway, forgiveness is what is important too; going back to not being perfect...

Enough already! Whatever we have been doing seems to work for us, but relationships are trial and errors and you must have fun finding out what works for you!

Happy Valentine's Day to all of you!

Moving on...

To our excellent adventure
Our morning started late...
We left the compound of our palatial eleven hundred square foot estate home on its quarter acre, with a mini 8'X16' Olympic sized swimming pool, fish pond stocked with five grown Goldfish, on a saltwater waterfront that is only five minutes to the harbor via our 20' yacht!
Departing at eleven A.M. to where, you so boldly ask?

The GYM/REHAB! Hubby's initial idea, but I surprised him with agreeing and getting ready to go this morning an hour before I had to be, ha!
I tried everything again, equipment wise, the arm-cycle, the total gym, the pull down thingy, but I was only able to do a couple of minutes on them, BUT I DID A COUPLE OF MINUTES! Better than no minutes, hmm?
Tired and worn out it was time to go TO LUNCH!

We had both had become brainwashed by the Red Lobster commercials with it being lobster month or something like that! So this frugal gal with her Hubby moseyed on up to our local restaurant that bears that name, Red Lobster. I ordered by desire not cost, lobster tail, shrimp and scallops all grilled, rice pilaf and Caesar salad and broccoli came with it too! Hubby had the four course meal with soup, salad and broiled Tilapia and desert. I shared with Hubby the lobster and scallops; since he is done with shrimp, too much we used to buy and we still do make Tilapia, but he likes it, we have ours Blackened/spicy. I was thinking ahead so when he had his dessert served the server brought two spoons for the ice cream and brownie that I told Hubby to eat all but a spoonful of each! That was enough and PS although my dinner came with drawn butter I did not use it at all, only a little bit of fresh lemon juice, actually it was so tasty au naturalle that I did inhale it with mucho gusto, heavenly!
We decided that their lobster bisque would be perfect for our dinner and that is what we did brought that home from there! 

Oh, why do lunch for an anniversary, well when you have Valentine's Day as your date, well here’s the deal folks…lunch is less crazy and usually without a wait or much of one, ya know?    

 I put my watch on when we leave the house, but forgot until we were out that the battery was dead so our last stop was Batteries Plus and yes they are quite competitively priced, in other words: not bad at all! 
Now I realize many are more than likely trying to figure out why I considered this to be K and T’s Excellent Adventure? First of all K is the initial of Hubby’s true identity and T is me here or there or anywhere, got that?
And the idea of leaving the home-front after too many months of NOT or going out for just the doctor or MRI… so getting to have some fun is quite my PERSPECTIVE on what I like to label OUR EXCELLENT ADVENTURE and the details of what that is, is above in both vignettes of my essays…  
On that love note of life is a bowl of cherries and no I do not feel that I am living in the pits, but they do show up on occasion, for us all, and that is why having any joy in one’s life with that special someone is MONUMENTAL and should be expressed and celebrated when that fluke of nature occurs, or not!
Sweet dreams to all!

Thursday, February 13, 2014

A matter of different opinions...

Perception is a matter of opinion some might say.
All people are entitled to have their very own.
But as we all know when opinions collide they at best cause friction and at worst can cause extreme anger!

Today, not unlike many days I once again disagreed with a person on a site that is for people to openly discuss symptoms of MS.
And this person felt that they had a cure... with a diet, Paleo, good diet too, healthy as all get out!

Yep, that incenses me big time, especially telling someone what they should do and they having Primary Progressive when the person telling them has Relapsing which is not as severe and relapsing also is called Relapsing Remitting and Progressive does NOT REMIT!

I guess the difference between a respiratory infection and lung cancer, might be an accurate analogy? 

Any-who, both are uncomfortable, but with totally different outcomes. And as we all know eating healthy IS important whether you have chronic or lethal illnesses or even if you are perfectly healthy! 

So I sent the person a message, via his timeline message board, privately, stating that I did not want to argue and we started discussing our families and spouses.
All in all we found commonalities, besides both dealing with MS, but differently and now with respect of each others' different reasoning.

Moving on...

Odd today that I found that the news at noon did not have the correct medal count for Sochi and so I emailed one of the news personalities during it giving them their own NBC station access link. No one emailed me back though; thanking me. http://www.nbcolympics.com/medals

I did notice it was corrected this evening on the news.

Oh well...

On that note allow me to be the very first to wish all of you a very happy good night and ask you to kindly count all your blessings and share all your overages with you know who and we will too!

And next time please be here or be square, ya hear!
 
OOPS THIS JUST IN: BURRIED IN MY EMAILS A THANKS FOR TELLING THE NEWS ANCHOR THAT WAS SENT AT 5 P.M.!

Wednesday, February 12, 2014

NO ONE IS SAFE!

Even in Paradise, we will have, that is within the hour our mild sunny weather will change drastically into "A SEVERE RAIN STORM!" Thunder and lightening are massive, as well as the system itself!





The north is having snow and sleet and ice and we are have rain, wind, thunder, lightening and even a few tornado warnings!
No where to hide, WATCH OUT FOLKS!



 Up north as you can see they are really fed up with the polar vortex by that proclamation! Third storm in a row for them and the whole area from Georgia northward; ninety-three million people are in the line of fire of winter's worse direct shot.
Thousands are still without power and more are suspected to have that fate in the near future too, with all the ice breaking tree limbs causing wires to be ripped out!

We too could be seeing that with the horrid weather coming our way!

Take cover and hopefully you would have stocked up on all necessities by now, we have thankfully. Make sure you know where you batteries are for those flashlights etc. or that your generators are on the ready, and also for our northern buddies have firewood within reach and dry, if without generators for heat...

All in all GOOD LUCK!

Now allow me to be the very first to wish all of you a very happy good night and ask you kindly to share all you blessings with you know who after you count them and we will too!

And next time please be here or be square, ya hear!

  

Tuesday, February 11, 2014

Better, sad, lunacy, earlier, stay warm to our north please!

BETTER: Skipper had quite an experience with his ill,fortunately with proper medical care he is feeling much better now!

He is eating and drinking and playing just like his old self! Yes, he will be ten years old next month. I suppose ingesting nonfood products is not as easy for his digestive system to pass through at this older age, perhaps this is a lesson for him?
Nah, even though he's canine, he's my kid and as sure as the day is long it won't make a difference with all that he went through... his memory is short. Sadly, he doesn't read or watch too much TV or movies, because for me it makes it all new again; too bad he can't take advantage of that shortfall, ha!

Moving on...

SAD: Goodbye Shirley Temple Black, how you made us all want to dance and sing  when we were just youngins too! You may be gone, but your joyful legacy lives on for many generations! America's little sweetheart!

Lunacy: Continue to get calls from old specialty pharmacy trying to deliver Copaxone and call each time to remind them I am no longer with them!
Then getting a call from my new specialty pharmacy telling me that they had not heard back from my doctor's office but they called last week to let me know that they sent the prescription to the NEW pharmacy!
New insurance still being processed, should hear by Friday?

Earlier: At 3:40.M. Mary the PT arrived, calling earlier to come in earlier, got that?
With our schedule that is oh so flexible, geez, I wish I was... any-who, we said of course and this time she did do an hour not an hour and a half, not going with that half in overtime. Just with ultrasound and different exercises, since the TENS after the second time didn't seem to help and certain exercises were too painful lying down and so these were done in the recliner, better positioning and less painful.  

 93 MILLION IN THE PATH OF HORRENDOUS STORM, BE CAREFUL REALLY BIG STORM COMING AT YOU!
LISTEN TO YOUR WEATHER STATIONS AND HEED ALL WARNINGS!!!!

Love to all and caution too!

Monday, February 10, 2014

It takes time for people to respond...

Skipper and Hubby are at the veterinarians office.
Skipper has been having stomach issues beyond his usual squirming, vomiting and diarrhea, two new symptoms of what he usually has had.
The doctor's office is where they injected him with nausea, anti-biotics etc type medications, and one liquid to be given orally at home and a new type of saline that is injected under his skin in the shoulder region and causes a bump that eventually gets absorbed into his system.

When Hubby and Skipper arrive back home I will feel much better.
You see, with my disc issue I still cannot sit up straight in the car or wheelchair, even if I could it is difficult for Hubby to menuever both Skipper and me around so I stayed home.

Got to go they just got home will tell more tomorrow.
  

Speaking My Mind: Interesting familiar diagnosis for one and horrifi...

Speaking My Mind: Interesting familiar diagnosis for one and horrifi... :   But these are MINE! Not Hubby's! What he has is not contagio...