Hubby again

Tobi is not feeling well again. Hopefully she will be back tomorrow.

Facebook

My question to all of you is why did you join this social media iconic network called, ‘Facebook’? To me it was to connect with new and different people from the entire world in all walks of life and to reconnect with not seen in a long time, family and friends, school chums etc. initially. Many I do know feel it is a very beneficial business tool, marketing themselves tool, selling their wares tool etc. and in that same vein a get me a job tool… I bet though that even in some cases, I am pretty sure, it has become a very helpful ‘getting to know you’ tool for finding a new romantic interest? Whatever the reasoning to try it out, it appears that many who have been posting pictures of family, friends and new arrivals, announcements of joy and sorrow have all found that it is still meeting their own personal niche of needs sufficed. And many of us enjoy seeing these strangers’ extended families, although we have no idea who they are. It is inclusion that seems to make us all one GREAT BIG FAMILY here in Facebook-land. Sadly, though, as with young teens and older college kids you should never ever post anything that you wouldn’t want your parents to see, really! We know how well that warning has been working… bud dump bum. And not to mention the bullying aspects of its way to soon in your face communication of intimidation it has been known to create with meanies utilizing it for bad, at times brutal behavior. Again if you wouldn’t say or do it in person don’t do on there. Better yet, JUST DON’T DO IT ANYWHERE! The only part that has caused me to squirm a bit in my viewing seat is when religious zealots feel that everyone feels as they do and frequently post extremely ‘religious’ posts about only their faith and feeling that all should believe as they do. Sadly, due to my own feelings of uncomforting fear of them not realizing that many people have many faiths and that when one is promoted above all others it is not appropriate and not understanding to respect others’ beliefs rights too. Does that make sense? I don’t try to sell mine I just state what I was raised as. And many feel in their promoting that we should all believe in what they do, you see that’s where I draw the line and I unfriend them for that. Now don’t all of you start doing that to get rid of me, ya hear? That was a joke, and I hope that you do get my point. I am not saying that they shouldn’t believe in what they believe in it’s just that they shouldn't tell others that they should? Is that clear? Oh well… Moving on… Heat, heat, heat we have heat, heat, heat and more coming, YES! We broke our record high today with a reading of 88 degrees and also all other records ever for this date in history, January 9th even for Florida. It appears that we will be having over a week more of the hots; get your minds out of the gutter, weather, that is in the eighties. On that note to wrap your brain around, our paradise with balmy weather, allow me to be the very first to wish all of you a very happy good night and ask you to kindly count all your blessings and share all those overages with you know who and we will too! And next time please be here or be square, ya hear?!

FINALLY!

Being a consumer can be hard some times, but I don’t have to tell any of you that for you are consumers too! Trying to return items, get the ones advertised at the advertised price, etc., you all know the drill. Well, the same is true for medical needs. And I feel that after careful tedious persevering banging my head against the wall with stubborn resolve have finally gotten my medications all sorted out into a manageable, financially doable availabilities to meet my current needs, for now. I felt the need to apologize to the Shared Solution lady, Carla, who told me to call The Assistance Fund and when I called yesterday they no longer had any funding left for Multiple Sclerosis co-pay help and so they told me I must have the wrong number and gave me another number to call Medication Assist and they too had nothing available. So I contacted the other ones I listed here last night and crossed out the two that said they had nothing to offer. Well, just because I didn’t want Carla to tell anyone else to call The Assistance Fund and not get anywhere I thought I should let her know what happened and so today I called her. She was quite insistent that they do have funds for exactly my needs, a person with insurance but with high co-pays and she said let me get them on my other line for you, and she did. Apparently, new funding came in late last night/evening and I had no idea, when they told me they had no funding I really thought that was it, but it wasn’t! And I was interviewed on the phone and met their criteria and so now I will be receiving my Copaxone without any interruption and without ANY CO-PAY for an entire year! I spent quite a bit of the day contacting the other doctors too for all my other prescriptions and whew, I do believe it is all going to somehow work out… at least I hope so. Who knew being ill was a fulltime job? Manage care, now I get it… You get insurance and then you have to manage your care! Any-who, I miss the good ole days when insurance really did cover everything and we had no work to do on our own behalf, and I can recall that our two sons with Blue Cross and Blue Shield while working and living in good ole NJ, out of pocket cost only $2 for the one and $6 for the other, for the phone and TV use, births/ deliveries were included in the hospitals with fulltime nurses on staff, way back when…1972 and 1976, those were the true carefree days…what happened to that? Gosh, memories are more vivid when you have comparisons, has anyone else realized that? Now I know why my parents knew what truly was what. On that note of finding some wisdom somewhere, anywhere, allow me to be the very first to wish all of you a very happy good night and ask you to kindly count all your blessings and share all your overages with you know who and we will too! And next time please be here or be square, ya hear?!

Organizational skills...

Yesterday, I was discussing organizing a pantry and this afternoon I was talking to organizations to help with my fiercely expensive co-pay for my Copaxone. You see, it’s like this the total is $850 including the $500 deductible which leaves the $350 for the three month’s supply. With all my other laundry lists of meds it seems to be frustrating to think that it is not including my $432 a month insurance premium, which is extra? Today I got all self pitying and said to Hubby that it would be cheaper for me to die, since even though it’s not accepted as part of my religion, as a Jew, although, I act more agnostic and I am sure that makes it okay with them, I want to be cremated. And that would only be one charge of perhaps the premium and the deductible and the co-pay for a month? And that does appear to be more cost effective as I see it, but it’s only an idea and a last resort to keep expenses down. KIDDING! I know not very funny, but unfortunately true… money wise. Stupid me I had to have insurance, trying to be a big shot or a normal big girl, well I got half that right! Bud dump bum... Don’t worry, after I saw the new gastro doc and was told they got it all set up for my Nexium and it was very difficult for them to do. I beg to differ I had to give them my info so they could take the first three months out of my account. He, the doc said it was not easy, and I said that they told me it would be fine. He is a go as I need to now. Anyway, we came home to have lunch and then I called the number the Shared Solutions lady told me to call today to check on my Copaxone being taken care of with a co-pay assistance program and it was the wrong organization number, but they said it happens often and gave me the other number and they, when called said they do not help people with high co-pays only the uninsured, Methinks I was better off being without…huh? They were kind enough to tell me of other organizations to contact for high co-pays assistance, which are below for any of you who may see the need and I also heard from NORD, National Organization for Rare Disorders, they were the first to help fund my Copaxone two and half years ago. I had emailed them, since they only have a D.C. and CT number not any 800 numbers, although I forget that my ancient cell phone has four thousand or more roll over minutes and it is good all over the US of A! Managed RX Phone: 800-799-8765 www.managedrxplans.com Patient Assistance Foundation Phone: 866-552-6729 www.cancercarecopay.org The Health Well Foundation Phone: 1-800-675-8416 www.healthwellfoundation.org NORD www.rarediseases.org/programs/medication National Organization for Rare Disorders 55 Kenosia Avenue Danbury, CT 06810 CT Phone: (203) 744-0100 Toll Free: (800) 999-6673 (voicemail only) CT Fax: (203) 798-2291 TDD: (203) 797-9590 NORD Washington Office 1779 Massachusetts Avenue Suite 500 Washington, DC 20036 DC Phone: (202) 588-5700 DC Fax: (202) 588-5701 NORD's Patient Assistance Programs: These below organizations are all thanks to a woman that responded immediately to me after sending my email. Christine Savino Information Specialist Medical Meeting Coordinator Networking Coordinator http://www.rarediseases.org/patients-and-families/patient-assistance http://www.rarediseases.org/rare-disease-information/resources-tools/resources-tools Drugs Assistance Organizations Free/Discounted Prescription Medication http://www.makoa.org/freemedicine.htm Medicare Pharmaceutical Drug Assistance program www.Medicare.gov 1-800-MEDICARE or 800-633-42273 MedSaverCard http://www.medsavercard.com/ 1-888-299-5383 National Drug Card (NDC) http://www.nationaldrugcard.com/ndc788 Toll Free 1-888-229-9042 Needy Meds Website: http://www.needymeds.com/, Phone #: 215-625-9609 Partnership for Prescription Assistance https://www.pparx.org, 1-888-4ppa-now (1-888-477-2669) Patient Services, Inc. (PSI) https://www.patientservicesinc.org/, 1-800-366-7741, uneedpsi@uneedpsi.org RX Assist - Patient Assistance Program Center http://www.rxassist.org, Email: info@rxassist.org RxHelp4U http://www.rxhelp4u.com/, 866-960-9497, Email: info@rxhelp4u.com RxFreeCard 2020 Fieldstone Parkway, Suite 900-245, Franklin, TN 37069, Phone: 800-213-7632, Email: sue@rxfreecard.com, http://www.rxfreecard.com/ State Drug Card http://statedrugcard.com/ I hope this helps someone, since I will back on the horn/phone again tomorrow with still trying to get my Copaxone co-pay settled. Meanwhile, Hubby for the heck of it looked it up under his Medicare, i.e. my Copaxone and Universal insurance just for the heck of it, since all his meds are covered for himself and the most his co-pay has been is $6… well Copaxone under his wonderful insurance MY COPAXONE WOULD BE $1325 co-pay a month! He looked in his book to check… that is ridiculous! Guess if I don’t get this Multiple Sclerosis medication that has warded off my exacerbations since June of 2011, I guess I will have to wean myself into nothingness…cold turkey and let the MRI’s lesions fall where they may…oh poo, sorry, there I go again… But seriously folks I hope that someone will have some luck and with ease of process… each time I try it’s like giving birth with heavy labor. And that’s what my spasms lately have been like, labor pains, even with all my anti-spasmodics, Baclofen and Gabapentin, crazy, perhaps I should reconsider my first cost effective option…KIDDING AGAIN! Any-who, we just got a phone call from number one son, and it was nice. On that happy gleeful note allow me to be the first to wish all of you a very happy good night and ask all of you to kindly count all your blessings and share all your overages with you know who and we will too! And next time please be here or be square, ya hear?!

Our day in PICS

Stop one was due to needing ink for our printer.

Stop two was two fold looking for to make our pantry put to better use with organization and for weed- b-gone below. No luck on the organizers and so we moved on in our search.

This is one of the three places we did get access to proper parking.

Stop three in our search…

Eureka my lazy Susan was found and at 20% discount, as always there

Stop four, famished and another two choices for ten bucks.

Dinning, in pleasant comfort.

Our journey takes us here as many journeys do, but alas none to be found here either for our organizational wants; only other necessities, hair products to maintain my natural blondness, and Chlorox 2 generic, four dollars cheaper, so we thought we would give it a try and baking soda too both laundry items.

Last stop and with determination, Hubby feels he can build the proper insert to make the customized pull outs… but of course! He did it for my crafts drawer in the laundry room! TA DA! He purchased runners, he already has plywood, and my suggestion was hardware clothe fronts to see in.

Used to be a window to a carport, and when we enclosed the carport to make a garage it was my idea to make it usable space…

This is our now pantry neatened up with my good marble lazy Susan being used; since this picture was taken I removed it and replaced it with our new appropriate pantry one. This is one day in our lives in search for, and when this latest project is redone to our specs, hopefully its function and neatness will be even better than it is now and we will show you the end result! On that note of my noteworthy desire, so far about $30, and should not be anymore, since Hubby has the rest of it all…allow me to be the first to wish all of you a very happy good night and ask you to kindly count all your blessings and share all those overages with you know who and we will too! And next time please be here or be square, ya hear?!

Due north...

Above you are seeing what I first saw less than fifteen minutes ago out of our front picture window, a pink cloud amongst the other normal clouds? The odd thing is our home faces north, not west where the explanation would be simple, a reflection from the sunset, but no this is our northern sky. An oddity or easily explained? “Other colors occur naturally in clouds. Bluish-grey is the result of light scattering within the cloud. In the visible spectrum, blue and green are at the short end of light's visible wavelengths, while red and yellow are at the long end.[14] The short rays are more easily scattered by water droplets, and the long rays are more likely to be absorbed. The bluish color is evidence that such scattering is being produced by rain-sized droplets in the cloud. A greenish tinge to a cloud is produced when sunlight is scattered by ice. A cumulonimbus cloud emitting green is a sign that it is a severe thunderstorm,[15] capable of heavy rain, hail, strong winds and possible tornadoes. Yellowish clouds may occur in the late spring through early fall months during forest fire season. The yellow color is due to the presence of pollutants in the smoke. Yellowish clouds caused by the presence of nitrogen dioxide are sometimes seen in urban areas with high air pollution levels.[16] Red, orange and pink clouds occur almost entirely at sunrise and sunset and are the result of the scattering of sunlight by the atmosphere. When the angle between the sun and the horizon is less than 10 percent, as it is just after sunrise or just prior to sunset, sunlight becomes too red due to refraction for any colors other than those with a reddish hue to be seen.[15] The clouds do not become that color; they are reflecting long and unscattered rays of sunlight, which are predominant at those hours.” Thanks to Wikipedia. I suspect although these clouds were to the north the power of reflection is mighty and more than my wee brain can understand. You know life is strange, little did I know that the smallest part of me would become my brain as I got older.(Silly me, but you see the issue, proof... it has always been that way of course, poetic license?) Another phenomenon that I have trouble understanding, for you and I both know I work hard to fill it with useful information as often as I can… at least more than two or three times a week… It used to be daily, but even I fall off the wagon at times. We all know that knowledge is power, but do you recall who first coined the phrase? Sir Francis Bacon in 1597, but of course! I can hear you all saying… But we all must admit that the way it’s tossed around you would think any of the non-profits or positive thinking Gurus had invented the idiom/phrase within the last decade, nah, it’s been around for longer than that! As we all know too well there is much truth in that statement. The more we know the more we want to know too or so it seems. That makes me wonder about more answers to my question about pink northern forming clouds and so if any of you know anything about that topic let me know here in the comments area below. It would be nice to hear from one or more of you. On that note of lightness of flightiness, allow me to be the first to wish all of you a very happy good night and ask you to kindly to count all your blessings and share those overages with you know who and we will too! And next time please be here or be square, ya hear?!

Memories in music can cause you to...

Swoon, giggle, smile, laugh, catch your breath or cause tears to drizzle down your cheeks and make you cry…music is powerful. Songs have words that are created in poetic form. Many are written with personal reminiscences intertwined in most of the stories. It warms one's heart to hear others say what you feel; the visualizations are so robust, at times you may think that the lyricists are reading your mind with their right-on expressions, no longer yours…but shared with the world. The joy is pure elation, the sadness, palatable. And in reality you don’t really mind who knows that you feel as you do. For we as people have these emotions and should never ever be ashamed or meant to feel that way. Commonality is good not bad; and to think that music is international and has brought all kinds of cultures together throughout history. Speak of powerful… if that is not; I don’t know what is. Most of us relate songs with personal times in our histories, such as romantic tunes for your significant others and sadness of losing a family member when there were better happier carefree times. Laughing is good and I can remember nonsense songs that I led on the camp bus, making us all get silly. Some silly songs make us sad though, since we may recall the person we sung them to is no longer with us. But focusing on the smile that it brought to the face that you sung it to, takes that sadness away! Tonight, is a bit of a painful one, since my shoulders are misbehaving and I will have to end this chat early… but since I got the ball rolling why don’t you go down your own memory lanes with songs that brought out your happiest and most fun moments in your blips of time… And enjoy them all. On that note of some note, I hope, allow me to be the first to wish all of you a very happy good night and ask you to kindly count all of your blessings and share all those overages with you know who and we will too! And next time please be here or be square, ya hear?!