Friday, September 4, 2015

Bloodsucker!

Ten vials worth was taken from me for testing that will take six weeks to get the results!
The vampira, Nancy, had to get special verification and use different size tubes to take my ruby liquid life's force for an examination and a trial to see what's what and causing me NOT to be ME!
Yep a trial of vials! The delay of outcome has not been told; it makes me feel as if I am living ye days of olde.

My fear is with my wee brain Googling all these symptoms verified by all thee doctors and me trying to take the mystery pieces of the body crime to find is causing me to lose all my normal lifetime! 

Shall I be an idiot instead and pretend to not know that all these symptoms do spell out many serious problems that have to be addressed!

Many already are or have been, but not all things tried worked.

Oh I forgot to tell that my neuro doc took me off of the Ampyra yesterday due to what we both suspected that it could be causing my latest problems, the leg paresthesia with burning twisting sensations, now in arms and lower extremities( knees to feet) that used to be fleeting but now is constant and has not gone away. 
So far there have been only two pills not taken of the Ampyra, since I was told to stop after my morning one was taken at nine A.M.yesterday, so last night's and this morning's were not taken.

I suppose after calling the company, Acorda, last week, and having spoken with their pharmacist and of course they support their product, but did verify that it was one of its many side effects.

Today, I Googled others who did not walk better with Ampyra but also ironically got worse, and even after stopping it had not improved sadly, meaning the side effects did NOT go away. 
Oddly enough it had been developed to help people with Multiple Sclerosis walk better, and for only that purpose.
In fact what many were saying is that it worked only 30% of the time; it is also sold in Canada under the name Fampyra as well as the UK under that name and has been here in the US and approved by the FDA since 2010.

So I am not sure what will become of me? 
This newest evolution of my being is most upsetting and not at all what I was hoping for...oh well...I wish I knew.
GET THIS WORLD SO FAR I HAVE NOT FOUND THAT MAGIC PILL! The one to make all of us who suffer with this malady of MS to feel better. What a fool am I for trying. I do believe I have learned my lesson...nothing will work. 

Good night to all and to all be well, sincerely! 
 

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