Saturday, August 29, 2015

Trying hard to be...

...something that I am not!
And that is someone who doesn't say anything about their pain.
So sorry people I am in horrible pain and this from a woman who had two four and half month miss-carriages!
And labor for one of our full-term sons for twenty-nine and half hours!
But that was worth it, due to having a beautiful healthy baby after! (The other one was only four and half hours of labor, much quicker.)
So when I say that I am in a lot of pain I do have a reference.
This is also from a woman who walked on a broken leg for two days! 
Please understand I am only explaining due to people making light of pain.
The hard part is that I am also well medicated and still have continuous pain.
Burning, twisting, gnawing, pain as if my skin is being ripped off of me, my legs that is. My right shoulder and wrist and hand make this very difficult, but for some crazy reason 
And I am not alone with this, many people suffer from this, and are told to buck up and basically to shut up.
Or go to pain centers that fill you full of more injectable high test drugs. 
Doing the simplest task calls for icing.
I still have that mysterious low grade fever even after ten days of antibiotics, daily in the afternoon.
I am waiting to hear back from my neuro's office that I called
yesterday.
I have spoken to the pharmacist with Ampyra my newest medication to see if that could be causing this or stress from all the surgeries and infection creating another exacerbation of my M S, both are possibles so that is why the call to the that doctor.
I even heard back from the Copaxone people who have been supporting me these last five years, but so far no doctor.

Frustrating, don't want to lose another one. 

This is more a spilling of feelings than anything else.
Thanks for listening.
 
Good night.

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