Thursday, May 22, 2014

Goofed!

Have you ever done something and thought afterwards, huh?
Today I had my new neuro appointment, (my third with him, wonder when I will stop calling him the new guy?) and I don't know if the fact that I had not gotten too much sleep last night; got up at 1:43 A.M. due to my headache again and didn't fall back back to sleep until 5:51 A.M., or the fact that I was more concerned with getting my copies of my tests or my pain got in the way or me forgetting the number one cardinal  rule of being a good patient, since I did not write my questions down, shame on me!

Dr. Khalidi, my new neuro, is a pleasant soft spoken man, and has been in his field for nearly forty years.
That said, he said I have some good news for you and that was that my lesions in my brain indicating that my Multiple Sclerosis is stable and that I have no active disease showing up there or in my cervical, thoracic or lumbar regions. And  my cholesterol is good, yet my blood work was a  non-fasting one my A1c was up slightly to 6.0,  and I am still not a diabetic, but I am borderline.
Most actually, nearly all of my parathesia and other weaknesses in my legs and arms were actually being caused by my spondylosis as well as stenosis in my cervical and thoracic spinal areas and lumbar degeneration, which seems to be getting slightly worse, but my MS seems to be in check with use of my Copaxone and vitamin use of doubled up Calcium with D as well as the B complexes showing they're  helpful in my blood work and due to my results of my lumbar 3Telsa MRI's inflammation there I suspect that also with all my existing bulges in nearly every segment of my spine and that again explains why I have pain in this overgenerous derriere while sitting upright, I suspect. No PT or curbing of my Gabapentin use, which he initially was concerned with, apparently now with legit documentation of reasoning for each and every medications' need he felt that was necessary too and my Copaxone refills were taken care of without any question for need either.  
And fortunately in spite of it all my liver and kidneys are none the worse for wear; the blood work attests to that too; ten vials full.
But what I forgot to ask is, now what?
Is there anything that I could or should do more of to help myself without creating more problems with my now known delicate spine, scary that thoracic stenosis is called creeping paralysis!

I know, I should call back and speak to his people there to explain my foolish mistake and the need to ask those questions and anymore I can come up with tonight, before tomorrow's call...
I do have another appointment for four months from today, but that is a long time for this not advantageous status quo; I am living with daily. I need to find the appropriate measures to take to get out of this living lump mode, my brain is functioning in spite of that being where my MS lesions have decided to remain and not spread down my spine...which is fantastic!
That does prove some of these disease modifying MS medications do and will work, thanks TEVA Pharmaceutical, who makes my Copaxone. They are out of Israel, but my medication itself comes from Indiana, I think.

Knowing that you have been waiting weeks to try and feel better and when you get the opportunity to change things for the better, you GOOF BIG TIME, by not following through! Sort of like a sports star choking on a basketball hoop shot, or missing the hole in golf on the green or fumbling the play on the field in football, you get the idea, OOPS! Mud on this face metaphorically, of course!

 Any-who, I would like to be the first to wish all of you a very happy good night, lest I forget, and also ask you to kindly count all your blessings and share those overages and we will too!

And next time please be here or be square, ya hear?


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