Saturday, June 16, 2012

Spontaneity, looking for the bright side, and trying hard not to punt...

Being able to be flexible for doing things, (get your mind out of the gutter) at the drop of a hat; is called, being spontaneous or being not involved in anything else therefore being available for whatever anyone has in mind that you might be interested in doing or that they might talk you into doing, okay, ‘spontaneity’! Got that?

I enjoy being spontaneous as any other gal would or should, but lately those choices have gotten smaller… go out, stay in, go here, go there, go into the pool or stay out of the pool, blinds up, blinds down, watch the rain or keep the sun out…you got that?

What has happened to MY spontaneity in MY life?
The craziest thing I have done lately is order sweet and sour chicken off the China King menu, instead of anything with shrimp.

Adventures, where are my adventures?
I can’t be tapped all out, can I be?
Yes, I do realize that I have limitations with my challenges the PC thingy I am supposed to call my inability to walk only with an aid or see only half of the world with one eye functioning, but hey, I’m good! All smiles, martyr here, can you see my wide grin?

Life is a laugh a minute, especially when I do those gyrations in the pool without any music, oh you thought I was talking about spasms, nah they have been renamed to make you all feel more comfortable…
One of the organizations that care for this particular fun filled laugh a minute ill has requested that we with this particular joyous disease that has no cure to date, but can be maintained with a boatload of medications. They, this organizations send out a newsletter and magazine and they actually requested for us who have this thing, that some do not call it as it is, they have asked for us to write about the positives of dealing with this albatross or should that be a dove around our proverbial necks, nah a dove is too small the latter was correct, called Multiple Sclerosis and its upside?

How dare they!
Do they think that most people can manage this disease with grace and dignity?
I suppose many do.
But are those too good to be true people in denial or have they felt that that is the only way others will associate with them?
Sure, I wonder what tact to take, whining is not flattering, but is going the other way honest?
Of course we all must find a happy medium, but not be made to feel worse when we SAY THAT WE ARE DOWN and need to feel the love; not be ignored.

Many illnesses are respected for what they can lay claim to.
Tell someone you have cancer and people rally around you waiting to see how it will all turn out…until you are in remission then they say Geez you beat it, no more pity parties for you! Not out loud, but inside they sometimes do; I hope not.
Sure, you’re a survivor, and that should count for something…If you horribly don’t survive at least they were there, hmm?
Everyone feels great about that, no regrets all around.
But have a chronic disease that lingers and boy, sympathy, try and get some after the initial inaugural of the pronouncement… well, besides being asked how you are when seen by them or phone calls or emails…silence if you say alright and gotta go; if you are honest… sadly true.

Oh, you say it's because I have a tendency to go on, and you are definitely right!
Getting a life in this condition is not as easy as many may think, but I am working on that with my big move back into something I love, volunteering, at that free clinic, once a week, as a patient advocate.

Reading used to be my outlet for discussion with people but with these eyes not working too well that joy has diminished and books on tape are for people who know how to listen well; still working on that one.
I do love DIY projects, but Hubby is put into action too much with my ideas, so I have to cut back a bit.
Crafts are fun too.
Perusing museums are limited in our last few years to a ten mile radius of our home, but I am hopeful that time and creativity may change that…our county that I am referring to, that is.
The desire is there, I have heard it being discussed.

And if Mote Marine builds their aquarium here, in Punta Gorda that would be wonderful and we would definitely go to that and a water park here in Port Charlotte, but no, we would not go to that, but others would.
At one time someone wanted to donate property for a botanic garden on the Peace River, but I haven’t heard anymore about that one, if that came into being, yep, I would go to that one too, on a cool day that is.

So the potential is there in my ten mile radius I just have to wait it out and then they will come? HA!
See, a positive thought about what I would like to do, and so much more… we used to have an antique mall that Hurricane Charley took away that would be great to rebuild it where it had been, right on this side of bridge, right alongside the Peace River again, so much potential and so many ideas…

Oh, that is for our area and for me too!
I suppose you could say that like everything else we are all works in progress, hmm?

On that upside of what life could and should be, allow me to be the first to wish you all a very happy good night and ask you to kindly count all your blessings and share those overages an we will too!

And next time please be here or be square, ya hear?

Speaking My Mind: Which way will the war go?

Speaking My Mind: Which way will the war go? :   My eyesight is going again... in case you missed it... Netanyahu snaps back against growing...