Feelings of exhausting needing desperately some refreshing sleep and not getting enough...even with napping for over an hour…no help.
Right legged bandings that are not dissimilar to tourniquets, calf and thigh wise… didn’t I just go through an exacerbation? What’s up with this?
Tripping when my foot won’t turn when I try to turn into the bathroom while using my walker…here we go again… can I make it to the chair…or is this it my need for a wheeled one always…
Sorry folks but this has been my day so far…
No medications seem to help anymore.
Heaven knows that I am on way too many already.
Guess it’s just a bad day…
And who hasn’t had those, too many though…lately.
Ah Multiple Sclerosis, not my friend, my enemy, but isn’t it all of ours who deal daily with it?
Surprises are never amusing with it.
Days get longer with it.
There is always guilt of losing more of oneself with it.
Hate is not strong enough how I feel with it.
Anyone else truly feel that way with it?
I know many have resigned their selves to deal with it.
Yes, I have it and it doesn’t have me; or does it? Me with it…
Shall we all be good little martyr’s and say OK with it?
NO!
I WILL NOT!
But what then?
Hope for a better day tomorrow…
YES!
We are strong people who have this life stealer of young and old alike.
Oh sure we can live a normal life span, but really?
Not normal and what is the quality of that life span?
New meds are on the forefront we hear daily, but only if you meet the criteria which is so specific and does not do well with other medications in the interaction department.
Surgery is still in the experimental stage although some swear by it who have had it, but some have died…too.
Hope is always there somewhere…
Will I be there for it when it comes?
I sure pray that is the case.
What else can I do but wait it out…with it…
Days come and go and so many are just another, do you get it with it?
Running into one another the endlessness of nothing changing…with it.
Oh yes it does, it changes it up some days which means that some are worse than others but, try to restrain, behave, you are a grown-up and shouldn’t complain with it.
Be strong and be thankful, you are not dying, oh no, not from this but it will come from a complication of it with it.
Move you fat slob, exercise, but how so without sweating since that exacerbates it with it… my head is spinning from my ataxia more so with it…
And the cure has made my glucose think that I am diabetic once again, giving me highs and lows… oh who knows… do you with it?
I am disgusted with it.
Can’t I say that when I am with it?
Denial seems to be the cure with it?
Tell me what to do with it?
I am so through with it.
Its so different for each of us with it.
So no one has the answers for us with it.
Many can’t see it and have no sympathy for any with it.
But we cry with it.
And hurt with it.
We try so hard with it.
Please be patient of those who deal with it.
We are you only with it.
That is the only difference is that we are with it and you are without it…
Tomorrow is another day and who knows what it may bring for me, perhaps I will be able to not think about being with it with tamer systems waning for me for me to become an amnesiac from this days occurrences…
Expectation and optimism is all we got if we lose them then we are goners…hmm?
Dear friends please know that I only have some really bad days that need to be told, I owe it to myself and it is how I feel and I deal… and so on that introspective rant of mine that I own… let me be the first to wish you all a very happy good night and to ask you to kindly to count those blessings and to share those overages and we will too!
And next time please be here or be square, ya hear?
Speaking My Mind is about: Tobi, who is a middle aged, no, oh all right a slightly over the hill woman with all the imperfections that go with that, and this concerns her daily life's perceptions and experiences.
Monday, July 11, 2011
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