Friday, June 10, 2011

Life goes on, but how well is it going when you're not yourself anymore...

We all have down days and days in life that we feel are not going to end well at times… I suppose many can relate to that?
I had promised myself weeks ago that I would try hard not to harp on my ills but when they escalate as they most recently have it is a no brainer why I cannot.
This morning I felt the need to call back my neurologist to let her know that things have not changed for me significantly, and she reminded me, as if I did not know that it takes time for the infusions to work. And I said to her that I should know that since this was my third time in a little over two years that I have had them. But my numbies in both legs now and my face and neck, and my lefty (eye) playing hide and seek still, are more than worrisome to me anyway.

Last night, my glucose level was at 284, which called for 6 units of insulin which was administered with Hubby filling the syringe ( my eyesight is iffy at best and so it’s better that he does it and I can find my chubby arm easily enough thus the tag team) and by me injecting, ‘pin cushion woman’ here. Between the infusions, daily Copaxone injections, and now the insulin I do believe that is not such a farfetched title?
I asked my doc this morning if I should do the step down pills which I had left over from last August's infusions that had been stopped since I was out of insulin and it made my glucose go too high too, not any different from the infusions themselves. But this time I have six more insulin shots left that I had thought I wouldn’t need and I know now that I might since I am now on the step down pills according to the doctor’s orders. I am also upped on my Baclofen to an additional pill too.
I called out of fear of another weekend without any resolve and the fact she closes her office by noon on Fridays, what a nice job, huh?
Her recommendation was to get to emergency if I take a turn for the worse or at least see her next week if it is not showing improvement, ok.
My next appointment was set for August, my usual is seeing her about every three to four months or as needed, mostly for monitoring my Copaxone use and how that is going.
I tell you that sharps container is getting quite full and it my second large one in less than a year, and I am talking a BIG SUCKER!
Fortunately, we have a county disposal of such things that I have only been to once so far, due to that large sized one of a hazardous waste/sharps box that I had been given, I guess that was a good idea after all.
The nurse brought me a fourth and Copaxone/ shared solution had sent me my third months ago, and so I am good.
Perhaps I should take some in from those druggie neighbors?
I am kidding of course, since I fortunately never met any of them.
Besides that would be carrying being neighborly a wee bit too far I think, don’t you?

I am sitting here after another dose of steroid pills that I still don’t feel any different from, and I cannot have any wine until they are all gone!
Sadly I did look that up and it’s a definite no, no due to causing death from killing the liver very quickly!
More quickly than the slower methods we all seem to prefer, over many years…HA!

On that bit of a wee bit more silly note let me be the first to wish you and yours to take care and be well and happy and may peace be with all of you and yours and to share those blessings with whomever you care to and next time please be here or be square, OK?

Speaking My Mind: Which way will the war go?

Speaking My Mind: Which way will the war go? :   My eyesight is going again... in case you missed it... Netanyahu snaps back against growing...