Thursday, June 9, 2011

Having three of anything invasive in twenty-six months is a daunting experience.

Hope this will be the last for a long time!
Trying to make heads or tales of it all since it is also quite wondrous; especially while on two other Multiple Sclerosis daily drugs of Copaxone injections each and everyday and 60MG of Baclofen daily too.
So far, my third beneficial IV infusion of my dosing of three days of Solumedrol is finis!
And I do believe that it should be working shortly.
I must admit I did sleep better last night and did not awake too many times.
My right leg though is disconcerting since it is still rather numb with my toes turning under on and off and my left eye is still playing hide and seek, my good one with the cataract lens. A worry of more optic neuritis is a constant concern with righty (eye) already gone. And there are no guarantees with any meds, are there?
Some like me have relinquished a bit more of themselves, meaning a few more deficits in abilities with each experience of exacerbations…sorry, but true.
When I removed the IV port carefully and all was done within the hour, this last one had a slight burning sensation and I fear it was because I forgot to take it out of the frig and only waited a little over an hour to use it; directions say eight hours, oops!
My arm also was slightly swollen when I removed it and so I iced it.
Yesterday, I had a minor red rash on my face, across my nose and cheeks for awhile but it went away and so I did not call anyone about it.
My nights have been needing the insulin injections since my blood glucose had been above 240 every-night.
You see once stopped, the steroids that is, my blood glucose is quite normal.
It is a hyperglycemic reaction to the steroids that has been so far temporary, thankfully, but consistent with each time I have had the infusions all three different occasions.

Good news: Hubby’s blood pressure went down earlier today than previous days!
One can only hope that his new combo of meds is finally working for him.
My jinx problem was working steadily in my head; I so hate to share that aspect of mine, especially with him or anyone really!

Any of my MS community peeps out there who may have had similar experiences please feel free to interject here. I do have a comments box below, just click on it and tell me what you have done about anything similar.
I suspect I only have three days worth and we had to discontinue the step down pills last time since my glucose went sky high and I suppose that is why they only give me three days of dosing while my cuz who also has MS has five days, she was diagnosed at 27 and is now 63, two and a half years older than me. She’s the Farrah Fawcett look-a-like?
And oddly enough she had her exacerbation just on Memorial weekend; how coincidental? She surprisingly called yesterday and what a nice surprise, and of course we could commiserate!
We are the third and fourth ones in our family with MS but our aunt and uncle, the others who had it have been long gone. Oddly enough they were only related by being married to her father and my mother’s other siblings. My mother and her father though were brother and sister, both also gone now and did not have MS.
We were all originally from NJ at one time where it seems to be a hot spot for MS, but many northern climates have been assumed that for some odd reasoning beyond my knowledge… No one still knows what causes it or we would have a cure, which we don't and it is an orphan disease only about five million of us worldwide.

Any-who, please all take care, be well and have peace in your life and your families too and share those blessings with them all!

And next time be here or be square, OK?

Which way will the war go?

  My eyesight is going again... in case you missed it... Netanyahu snaps back against growing US criticism after being accused of losing his...