Saturday, September 25, 2010

Bio, Blog and Advertising...

Most think that the people they associate with know them.
I suppose that is an assumption that we really shouldn’t make in life unless absolutely sure, and we all know what assume means… correct? (Wink, wink…)
If not let me refresh all your memories: making an ass of you and me. (I just cringed for using that word (ass); will I ever grow up and get over that? Who knows…?)
With that said I thought my nightly divulgence of my entire life and how I think about things was simple and concise enough to allow for a full blown entrance into what makes me tick!
I have written a bio that I felt was a good synopsis of me, and it can be found on my profile page on Facebook.
And anyone who wants to know how I am can tune in nightly here, so logically I thought I covered all the bases?
But not so since I received an email from a lovely older friend of mine who questioned me about what I have been up to just today; did I realize I could be so wrong to assume that!
I don’t know why but I get a wee bit tense when asked or people suggest that I am well enough to do this or that.
Invitations to all sorts of things come in daily about going here or there or doing something physical that I no longer am able to do and it frustrates me and I want to yell at these people and say; didn’t you read my bio?

A few people have destroyed my legitimacy with my Multiple Sclerosis since for some unheard of reason they have been able to minimize their inabilities to continue in their own lives like its no big deal with having MS. There are people who do not have severe cases of MS or mild Relapsing Remitting and they are a rarity but when they get media coverage like one of the last political candidate’s wives having it and she appeared just fine and was quite able bodied. I wonder why that is? Has she found medication that the rest of us non-billionaire spouses or others with MS do not have access to? Yep, I bet now you recall to whom I am referring.
She shocked me too, but I do wish her well and to continue with her unabashed wellness.
Most of us are not so lucky medicated or not.
One great thing about being on the computer Internet and Facebook is finding people that you can relate to with similar experiences, and this thing called Facebook has an amazing MS community that I have slowly cultivated and immersed myself into.
We support one another with our physical complaints commiserating; access to new procedures and medications and just with atta girls or boys; what have you?
Friendships logically should come from so much intertwining of understanding where the Non-MS Community has failed to get us, but we get one another and patience is exuded by many but in reality not all, since some are in denial still and don’t want to discuss it.
Is that not true of many diseases or disorders?
The best way to understand anyone you care about with any chronic ill is by finding out as much as you can about it.
I know it may seem unfair but I have been judging a few of my so-called friends by testing their knowledge of MS, and recently mentioned that it was a neurological disease that affect the nerves, myelin sheath in the brain and spinal cord, and when they looked at me like I was talking gibberish then I secretly felt my heart sink thinking they really didn’t know a thing about me…
Not that I am my illness but at least try and understand what I am going through; I know I have done that with my friends and their ills!
Unfortunately my MS is all too much consuming of me though to be honest my day does not go smoothly because I have it and it constantly reminds me it is there, not like other ills.
Today I fell off my bath chair and that was quite awful and painful, but then my body went very numb and I had to get into bed for most of the day that spoke volumes of how my day is from chair to chair and when really bad to bed. Not just some days every day!
The worst is when the arms don’t work and my little puppy Skipper only fifteen pounds wants to join me on the bed, and I can’t help him up because it’s too painful. Dizziness is rampant too, which makes using the walker even difficult, especially when legs and arms are in pain or just plain numb not to mention the fact that only one eye is still working and the other has yet to come back!

Life can be boring on a good day and miserable on a not so good one, so visit me!
My daily shots are a high point of my day!

IDIOM DAY (Beating my dead horse day), once again folks or broken record day, which is also an idiom I suspect, but not having been an English major I am not quite sure, but you can look that up, right?

Leaving you with homework, oh, also may I recommend going to many legit MS sites: just copy and pastes: http://www.nationalmssociety.org/index.aspx http://www.msassociation.org/ http://en.wikipedia.org/wiki/List_of_multiple_sclerosis_organizations
Who knows you may become an aficionado of what ails me?

On that self serving divisive idea I will wish you all a very happy night and ask you politely to count those blessings and any overages to share, and we will too!

And be here next time or be square, OK?

Speaking My Mind: Which way will the war go?

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