Saturday, August 14, 2010

594, and a bit of frustration after two IV infusions...

I am in a mixed emotions sort of day… since I am so thrilled that I now have 594 new friends on Facebook when only about a month ago I started my campaign to have a million when I only had 34 friendly peeps on board, hooray! And I would like to thank each and every one of you!

My reason for also having still of a bit of frustration is the fact that after two days of the IV 1000 MG. of the Solu-Medrol infusions I have not gotten any difference in my sight yet, and yes I do know it could be awhile after treatment by days or even weeks, but it is still a wee bit disappointing. And last night I had a bit of a scare when my glucose level rose to 260, but believe it or not after drinking a cup of decaffeinated green tea my glucose went down in just a half an hour to 251, and with another cup and hour and a half later it was down to 207!Could I be on to something or perhaps I was just stressed from the initial number and it relieved that?
I did have an RN on call who was ready with insulin if need be, and we spoke by phone and fortunately I did not need to have her come back to give me those shots! I also was running a low grade fever that still this morning was fluctuating on the high side; steroids are no fun folks believe me!
Well, tomorrow is the last IV dose and then on Monday I start the step down pills.
Meanwhile I spent some time trying to find out more about my fate with this Optic Neuritis and I read some of those chats about the topic and some were so sad and negative. And a few made me want to cry because as most do know I am sure that MS is usually a young person’s illness where many in the twenty to thirty age group are the first diagnosed, and getting the optic neuritis can be an initial indication that the Multiple Sclerosis will follow in fifty per cent of the cases of who do get it.
Blindness can be caused by optic neuritis too and when left untreated for too long and it can be a tremendous faux pas in not acquiring speedy treatment. But you see, no pun intended, oh all right it can be intended, since sometimes this enigma of a symptom of blurriness can mean all sorts of eye problems that are less extreme in the affects to your sight and might very well diminish on their own accord or have many other types of treatments including cataract surgeries if that is what it is. What I have learned and do hope not too late is that medical intervention when things aren’t right as soon as possible may be more beneficial and proper to do especially if you have a history with all sorts of eye problems like I have had. Foolishly I am now praying, yes, this Agnostic child of the almighty he/she perhaps or not, that I will not lose my sight in my right eye for good because I waited too long to take care of the problem and hoped it would go away, which to be fair sometimes it does even with optic neuritis! But sadly it didn’t.
I also discovered that what can bring it on are too warm temperatures, ha!
This is Florida in August, and most days I have felt like a prisoner in my own home in the air-conditioning, and now even with my pool calling to me to do my ROM exercises, which I had to put on hold due to my nasty shoulder sun exposure problems then the rains chilling it out, and now it causing this eye problem of too much sun exposure even with my very dark sun glasses and the heat, heat, heat! What can one do?
Seriously, what can one do?
My only form of exercise has become my enemy to my health and that is too weird to wrap my head around! Think of it, the exercise is good, but the heat and sun are not, for me! Oh well, if any of you out there have any ideas let me know, OK?
And I do mean that folks! You are nearly a few thousand strong on this and now with my FB friends too why that’s nearly my million, LOL!

On that short note of required silliness ending I will wish you all a very happy night and to all count those blessings and we will too!

PS welcome to Florida Mr. President and First Lady Michelle and Sasha please enjoy your stay!

Which way will the war go?

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