Wednesday, May 19, 2010

Amazing how a company can follow up when you don't even have their product yet!

Last evening I received a phone call from the pharmaceutical company that makes the medication that my neurologist wants me to be on, me too by the way, for my RRMS, relapsing-remitting Multiple Sclerosis.
They were following up on her, my doctor’s request to get me ready for when I will be on the injections, what have you the front men, or in this case the front women.

This was including my own personal contact person in the state of IN, Indiana, she just wanted to let me know that they would be sending me by FEDEX my automatic injector within the next few days, and also the RN, registered nurse that will be teaching me how to inject this daily medication called me this morning. Who is local by only being about a hundred miles north of here.

They did give me to another RN last night to ask any questions I might have, but that one was in another mid-west state MO, Missouri I believe she said.
And I was also told that I would be having a peer advisor to talk to any-time I needed to discuss my feelings or if I had any questions, so far I have not heard from her, but I am sure I will.

This is the most attention I have had since … gosh I really don’t know since when? LOL
And if it weren’t for the reason of me having an incurable disease I would almost be enjoying it.
Who can complain being in the center of a program that will give my diagnosis the wings to be respected in the sense of having people wanting to do something about it, I know I am not too proud to accept the help that I truly need and have wanted for years!

The crazy part of all this is that I don’t have the medication yet or even the forms to fill out to get the financial information taken care of.

You know, I figured it out, the number crunching I mean, and if I were able to live a mere twenty more years, who knows with medication I could that if they approve me for the financial assistance that it would be nearly three quarters of a million dollars worth of injections! Mind boggling, huh?
I suppose they are capable, but still that’s a lot of bucks!

Any-who, I did go into the pool this afternoon after lunch because would you believe the air temperature only got up to the eighty-five degrees that I needed by then, but oddly enough the pool was at eighty-six degrees earlier then the air finally caught up!
Unfortunately, after only forty-five minutes my upper right side went into severe spasms so Hubby went into the house to get my Baclofen and I took two of them and relaxed for few moments and then went in to shower and change, a warm shower seems to help too.
Oh well, I did have a not too short workout.

I did something else this morning I went on the site where I got my reasonable mobility scooter and looked up their cost of walkers with seats and I found one that was a fraction of the cost of the local medical supplies because it was on sale for one hundred and twenty-one bucks off! And so I ordered it at that bargain price, which is nearly what an old used one would be. My idea is to try and walk a wee bit and rest with that seat and perhaps I could take off some of this nasty weight and not have my hips hurt so much!
But I need to be able to rest and the Ataxia has screwed me up so badly with my balance that this might work if I don’t go gung ho right away and pace myself.

On that more positive concept I will wish you all a very pleasant good night and to all count those blessings and we will too!

Speaking My Mind: Which way will the war go?

Speaking My Mind: Which way will the war go? :   My eyesight is going again... in case you missed it... Netanyahu snaps back against growing...