Saturday, April 17, 2010

Better now... but on occasion... or I should say periodically…

I fall off the wagon of better health through pain, discomfort and downright misery, but why should I complain… I’m not dying…yet!

As a past fund raiser for different non-profit organizations I always found it interesting how people just love to give if the disease was fatal, but if just annoyingly chronic forget about it.

Unfortunately, sympathy for ailments of the non lethal right away kind is few and far between on the, ‘you poor dear meters’.

People just don’t get it.
If you weren’t given a prognosis to be dead, yes I did use the ‘D’ word, within a certain amount of time, forget about it, who cares, no its much worse than that; why should your organization get any money for research when you can live with all that pain and suffering until you are an old person.

Sadly people tried not to admit that was the way they actually felt when I was out there trying so hard to get these funds, but nobody got it, even if most all peoples will get some form of arthritis if they live long enough. PS Rheumatoid, and Lupus you can die from complications that is, which are just two of the more than one hundred kinds of arthritis that harms, maims, and disfigures many people.

Multiple Sclerosis is way more ominous though since in reality people do not always live a full life span. Many with the progressive form die way too young, in their forties or fifties. But that is the only one people seem to know about, when there are three types. Mine being the Relapsing Remitting kind which is the most common for women, and you can go into complete remission, which I had several times over my thirty odd years dealing with it and that is why I say it is ominous, people just don’t get that because they think you are cured, and some are; not going out of remission ever again.
But then it can comeback, and each time take a little bit more of your abilities away with each one of its new visits, some even may go into the progressive type. Fortunately, I did not but my last year’s hospitalization made me think it was that, and I would not get any of me totally back again. I have not gotten worse thankfully but not that much better either. Every time, I have my daily episodes of weakness in my legs that make me nearly fall off of them and I must sit before I do, or the muscles spasms, which by the way for all you Mothers out there who may be able to relate this way to them, think of labor pains because that is how it feels, those spasms, got it? No fun at all.

What a joy I am tonight, eh?
Sorry, but being curably ill for a few days gave me time to think about how awful my chronic ailments are. But to be honest those sinus/migraine like headaches which cause vomiting and the inability to sleep or sit upright are no fun and seemed to have become chronic too, since I get them several times a year, and with high blood pressure I cannot take any over the counter medicines for sinus.

On a different note…Hubby has been in a repair mode, our solar panels have been leaking again and his usual method of fixing them has not been working, but he will try again after… He finishes fixing the shed roof that a windstorm ripped to shreds, oh what fun he is having too!
Because of him trying to take care of me and fix all those things and that is why we had the pizza and salad of last night fame.
Tonight I was a wee bit better and so I prepped dinner and he barbequed our burgers and rosemary/garlic potatoes. The very lean chopped meat 97% was embellished with mushrooms, scallions, onions, garlic and secret ingredients, all healthy.
It’s the least I could do, yep the very least.
But I did accomplish to do three loads of wash, all dried and put away! TA DA!

On that positive note I will bid you all a good night and to all count those blessings and we will too!

Speaking My Mind: Which way will the war go?

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