Monday, June 9, 2014

"A vivid creative mind is just one of your great attributes." "You will never regret the present, you live life to its fullest."

Good news, bad news kind of day!

I had my EMG today at Dr. Khalidi's office, my now former new neuro...
He gave me the good news that my stenosis is not impinging on my spinal cord, only pinching nerves from my neck...YEAH!
Then I asked him if that is not the cause of my walking problems, what is?
He said it is my weight and that my MS is stable.
Okay, then what is causing my balance issues?
A middle ear problem.
Hmmmmmmmmmmmmmmmmmmmmmmmmm............
Four other neuro doctors before him and before all the meds enlarged me and I had had walking and balance problems and then they told me it was due to the MS, Multiple Sclerosis!And that after a visit to an ENT who ruled out ear problems at that time, I was then diagnosed by my first good neuro that I had Ataxia as well. He was a good guy but moved away...
Khalidi's answer: that was then this is now.

While I was getting the test he was not at all talkative and before it too.
I told him that Dr. Nord wanted a copy of the test, nothing, silence.
I then told him that Dr. Klein diagnosed me last week with Optic Neuritis again,nothing, silence.

After my questions without all answers answered, he said that I should get another doctor!
Hubby was not in with me for the test.
I do not know if he used rubbing alcohol before he stuck me with the needles during the test and when I showed him blood running down my one arm he took a cloth and wiped it I think he took the cloth off the counter...not very sanitary!

I asked for a copy of the test on my way out and Rhona said tomorrow, but Cheryl said in a day or two, and that she will call me, huh?I paid for that test and I would need it for my new doc! I didn't say that to them, but after I told Hubby what happened...

The other day while at Dr. Nord's she also mentioned the difficulty she had with getting my tests from his office and how she was basically ignored.

The worst of it all is not once did he mention what I could do to help myself, he did though, even today say that I could get an opinion from a neurosurgeon. He didn't get it, I didn't question his tests results only what was then causing my problems and what I should do about it, yes, I know I am NOW obese and my ears are fine and I still have balance issues, but I wasn't this fat when I was first diagnosed with all these problems then too, and he still didn't help me at all!
Just as well I have been dismissed from another heartless, should have retired arrogant a-hole with the nerve to call himself a doctor!
Any and all questions asked were ignored; I truly believe some doctors prefer dumb patients, I'm just saying...following what they say blindly without question or questions...

My resolve is in progress I will be going to a Silver Sneakers gym tomorrow to talk to a personal trainer.
This is mostly through my Florida Blue, yep, as well as getting a Care Team Consultant, a coordinator and logistics medical provider person also from my insurance.
Gosh didn't know about this before, the Care Team thingy, not the other...

You see, I did believe his results and now I know what I am dealing with spine wise not to be injured more; at least I do hope the trainer will be able to be cautious with my particular situation.
As far as a Care Team Consultant goes, my too many years from wanting to know things has created me the desire to always ask knowledgeable people with thinking that I would get answers, not trouble... never looking for it, really!
I should have known better with two brilliant sons and one being somewhat arrogant too; I used to warn him that it was wonderful to be confident but being over-confident can be very close to arrogance and it's best not to step over that line....,ha!

Moving on...

Hubby cheered me up with my favorite Chinese foods steamed shrimp and Chinese veggies as well as egg drop soup, thus those two fortune cookie messages.
Darn though Hubby's was the first one, but he handed it to me saying it belonged to me, what a GUY!
And yes, the second was mine...lets just say we used to and are trying hard to again!

On that note of some interesting quotes allow me to be the very first to wish all of you a very happy good night and ask all of you to kindly count all your blessings and to share those overages and we will too!

And next time please be here or be square, ya hear! 

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