Friday, March 15, 2013

I am sure happy that I am flying by the seat of my pants still...


Not knowing what the heck I am doing with this newest of my DX ills of these last several years, called Multiple Sclerosis. Ya know I basically gave my body over to the medicos to tamper with or save or do with what they may. And Gosh almighty I have trusted them in most cases and in the end I have been right. Sure I am not cured, and am no ham to be cured, ha, but I am stable. According to my MRI for the last couple of years I haven’t gotten any worse, and even my blood work proves that too. That aberration with my glucose being a smidge higher I thought back and February is our anniversary month and we had bought a bag of chocolate kisses and I made that yummy cake and so… that could be all it was, the doctor asked me about sweets eaten and well, at the time I had forgotten! Too much sugar can do that. Many of the MS community online keep looking for cures. Or magic recipes in the realm of the natural way to make it all better or all gone? But what I have been reading none is any better, in fact some seem worse. CCSVI, best explanation of the procedure I could find: http://www.synergyhealthconcepts.com/ccsvi-3/ has had mixed results and is now going under the scrutiny of the FDA, best information on whether the procedure was approved: http://google2.fda.gov/search?q=CCSVI&client=FDAgov&site=FDAgov&lr=&proxystylesheet=FDAgov&output=xml_no_dtd&getfields=* but as of what I have been able to ascertain to date is that it has not been approved nor is it covered by insurance. People are very defensive when asked if they are doing any better; most say wonderful, better than ever, although, without mentioning any names, I do believe a few may be misguided on all that it is supposed to do. I know one guy, who is unable to do what he used to do before he had the procedure and is not at all better. As we all know that the mere diagnosis of any form of Multiple Sclerosis makes one ask is it progressive, and yes it is for most all of us that is except for the benign rarest form. Relapsing Remitting is what I was first diagnosed with, but of course that would mean you get worse than better but with me I have not gotten any better. Some days are bad and some days are not so bad, but not better, but to be fair I have been like this since 2006! My last true exacerbation where I needed additional medication was June of 2011 and of course nasty July of 2010 when I got my Optic Neuritis and lost righty, my eyesight that is. Sure I have to use a wheelchair but that is due to my right hand having Basilar Joint Arthritis and Ulnar Nerve Impingement, neither related to MS and I had it before I was diagnosed it had gotten worse by having to use the walker and the button on my scooter. My point is that sure I am on a boatload of medications but they are doing their individual jobs and so far I am none the worse for wear, and I seem to be doing a bit better than the others who don’t seem to believe in drugs…Well, all I can say to them is that I am sooo glad I waited until my golden years, (instead of my teens and twenties when any self respected 1960's kid did do them; too goodie two shoes here, moi)to become a druggy and a wino, since it all seems to be keeping me STABLE! PS I was speaking physically, not mentally folks! Kidding, or not… who knows… On that note on much ado about something, allow me to be the very first to wish all of you a very happy good night and ask you all kindly to count all your blessings and we will too! And next time please be here or be square, ya hear?!

Speaking My Mind: Which way will the war go?

Speaking My Mind: Which way will the war go? :   My eyesight is going again... in case you missed it... Netanyahu snaps back against growing...